Ostomy Topics

For the first time yesterday, I decided to play Osto Roulette and have a bagless shower. I used my lovely new shower gel that I got for Christmas and had no output at all. Result! I then put on my new bag, slathered myself in my new body lotion, and put on my new loungewear... I felt great!
Feeling very pleased with myself, I started to go about my day when I suddenly felt something wet drippi ...

We often hear or read stuff about people’s appearance while wearing an ostomy appliance. We certainly emphasize physical beauty today and, to some, being an ostomate eliminates dating possibilities and, sometimes, professional advancement. Sometimes we get comforting suggestions from caring folks telling us things like “Nobody can see it”, “it doesn’t change who you are”, “Nobody ...

Hi all,
I am new to this discussion group. I am a little over a year with an ileostomy now—very happy to be here and asking this question!
Has anyone tried swimming in an indoor heated pool? Would you recommend it or stay away? Also, if you do recommend it, what precautions should I take to make sure there is no leakage? I appreciate any advice you have.
Thank you,
Susan

CUI Wear
As we have a few new members, this may be of help. For ostomies, the underwear has pouches to support our bags. You can choose left, right, or twin. The best bit for us in the UK is that we can get them on prescription from the NHS.
Hope the info helps. I think they ship internationally as well.
https://cuiwear.com/

When you change your bag does that day count as day 1? I changed mine this morning and usually change it every 3 or 4 days.

So would Thursday be day 3 or Friday be the third day? Today is Tuesday.

Any tips on pancaking? I'm a little over 2 weeks post-surgery..
Thanks

Hi! Is everyone using stoma paste? I started out using it because my stoma nurse told me to but after a while I stopped just due to it being so messy and I didn’t really think it was doing anything. I watched countless videos with folks who didn’t use it and have never had issues. Your thoughts??

Hello everyone. I just started using a new pouch lubricant called “It’s in the Bag” from revel. It has helped to reduce the “pancaking” I have problems with by quite a bit, although not entirely. It is extremely effective in getting my output down to the bottom of the pouch and the output slides out quickly and easily when I empty. The website address is: revelostomy.com. You ca ...

My husband has a lot of pain from his recent ileostomy. Large colon and rectum were removed due to colorectal cancer, and his buttocks were sewn shut. He still has bleeding from his butt 4 weeks after surgery and has to take pain meds every 4 hours. Is this normal, and how long until he starts getting relief?

I have been having serious problems with my Hollister products since the pandemic started. Let me start with the fact that I have been using the same products for 13 years prior and there have been no changes to my weight. I was wondering if other ostomates have this issue. I used to get 4-5 days out of an appliance, now we're down to two and on some bad days I have to change twice in one day. ...

Hi All
I've had quite a week! I went for a checkup on Monday with my consultant, and after some scans and tests, he sent me for a colonoscopy yesterday. The result was really good, and now my reversal is set for next Monday.
I'm both excited and nervous. I wasn't expecting it to be so early, as I'll be just 10 weeks post-op.
What I'd like to know is if anyone has had a reversal this early and ...

First off this is after the removed bag with just residue no-sting paste and wafer. As you can see for some reason the paste didn't harden after 24 hours (as it should have just peeled off) and didn't adhere to the damaged skin.

Apparently this is a product defect of some sort, quality control or some sort of environmental issue perhaps. A grave concern as I've been trying for months now and ...

I have an eight-month-old ileostomy and have started gentle core exercises to prevent a hernia. But even the gentle exercises seem to be creating a hernia. Any suggestions?

Hello Everyone, I’m back after my proctectomy/end ileostomy. The procedure was 11/18, so I’m still very sore and tired.
My surgeon removed my rectum and anus, and fully stitched the wound closed.
I’ve had a heck of a week. Day 4 at the hospital, the stoma nurse noted an infection at my stoma, but the doctor didn’t believe it. No antibiotics for me!

The day I was discharged, I ended ...

Hi all!

I've had my ileostomy for a little over a year. Typical issues with leaks and finding the right products, figuring out what (not) to eat, wardrobe management, burping, peristomal hernia...

Brand new problem and I can't find ANY information about it.

I have so much trapped gas, and I can't get it out! I used to wake up with a bag full of gas, burp through the day. These days, no ...