Ostomy Topics

Hello -

Our group is trying to gather some information re the yearly cost of supplies. Round numbers are fine (e. g. $800.00, $1,00.00, $1,200.00, etc) and please include only the basic supplies. The purpose of this info gather is to set a bench mark so a realistic figure can be presented to the various Pronincial Governments. Everything is confidential...thanks for your help.

Bryce

How far do our intellectual choices inform us - help us, to actually cope and thrive?

For most of us would prefer to be actively living rather than going through periods - however short-lived - of merely surviving our ordeals, hey!

What best unexpected happenings are you able to share?
How has the unexpected experience had unforeseen consequences?
Everyone has these - remember yours?
We ha ...

I have an ileostomy. I had a J-Pouch for 38 years. I had emergency surgery in May of 2023. I am interested in finding ostomates who have had successful reversals connecting their small intestine to their rectum. The pros and cons of this surgery.

Hi all,
So I noticed today that one of the spots I have leaks the most is where the skin changes to stoma, but is still flat… so I guess I've been putting the barrier ring on top of stoma tissue that is producing the mucous. Does anyone else have a similar story, or how to solve the problem? Essentially, anything that has to stick down will come up because of the moisture already under ther ...

How long did your doctor recommend waiting before having a reversal? Appreciate all responses.

I have an odd-shaped stoma opening due to a stoma fistula, and that, coupled with liquidy output, I'm getting leaks. I'm wondering if it's because my belly takes on a different shape when sitting and possibly loosens the wafer around the stoma. I'm using Sensura Mio now and overall like it. Any thoughts?

Hi folks, for those of you who have returned to work…how long did it take to feel normal again?

Hi
Is it true that your bag should not blow up on board due to air pressure?
I'm thinking of going to Australia.
Thanks

Does anyone use the Sensura Mio Flex bags with the adhesive coupling? It looks like a disaster waiting to happen unless the two pieces actually bond together. ‍ I received an email about them and I'm just wondering how they work and stand up to use.

Has anyone tried Brava protective sheets? I seem to be having an allergic reaction to the adhesive. I know they can be used under the wafer to protect the skin. Do I need to completely cover the area under the wafer? I don't even know where to begin but have tried crusting, barrier sprays, etc. Anyone have any experience using the sheets?

Hi, I was wondering if anyone has tips for flying. What kind of stoma bags do you use when going abroad? This will be my first trip abroad since I had my colonoscopy. x

Is it normal after 1 1/2 months to still have the urge to have a bowel movement and a small amount of something coming out, also watery brown stuff when I wipe?

Hello everyone, I am here to post in memory of my Nanny Sheila, who sadly passed away on Christmas Eve. She had an ileostomy at age 30, and had it up till when she reached 80 and sadly passed away. My nanny was a huge ambassador for ileostomy as she had one for 50 years. She didn't once complain about it, and rather was very proud of it. My family and I have created a ‘Just Giving' page in h ...

If you've had your ostomy for over 50 years, you probably had it as a child or at least a young adult. I had mine when I was 12 (after two years with ulcerative colitis). Looking back, I'm wondering what the long-timers feel has been the good and the bad, gratitude versus regrets.
For me, I was healthier post-surgery and resumed normal growing. And while not worried about being close to a bat ...

I remember reading how someone got more than one use out of each vial. Any suggestions? And where do you buy it? Tried Amazon, but only business accounts can order.