Needing Hope to Get Me Through Tough Times

Replies
31
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2196
7dragonflies.hm
Sep 04, 2023 6:27 pm

I know the emotional stuff you're talking about. This really changes one. I've had my little friend for about 5 months. Nearly died from infection due to perforated colon, good ol' diverticulitis. I'd been sick for a year, living on antibiotics. Anyway, lucky to be alive. But still.

Sorry to ramble. As far as clothes go, I've bought a lot of jumpsuits/rompers. They tend to conceal it pretty decent. I also bought a head wrap, like a tube top type thing, it works pretty good actually.

Hang in there, you are not alone.

BSUWOMAN45
Jul 20, 2024 3:52 pm

I had an emergency bowel obstruction surgery back in March. I also have spina bifida and use a wheelchair. My stoma is on my left side as well and higher. So, I just had to buy underwear that I could wear either over the whole bag or at my waist in the middle to make it comfortable. I also really have not worn regular pants or jeans because the weather got nice where I was, so I've spent the summer in dresses and skirts. But for the most part, people who don't know I have the colostomy can't ever see it under my clothes, but I also don't wear tight clothing because it's just not comfortable for me in my wheelchair.

So I hope maybe the suggestions will help you feel more comfortable.

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