Can Crohn's Disease Be Hidden by an Ileostomy?

Hi anyone -

Following a question I asked in another thread and based on Does reply -

is it possible that I may have crohns or UC orsomething and we can't tell because I have an ileostomy - how would itpresent itself in that case, any ideas?

Currently experiencing

• bad gastric reflux/horrid taste in mouth
  
• bloating
  
• nausea
  
• fatigue
  
• muscle aches/tics/generalised pain all over
  
• sleep disorder - apnoea and drowsiness during day
  
• bad skin - esp hands, very dry and cracked despite constant moisturising
  
• blurred vision
  
• frequent dizziness

The above has been put down to my huge hernia/diabetes/depression and fibromyalgia - just wondered if it rang bells with anyone as I initially only had my ileostomy to facilitate wound healiing of a fistula, but the fistula is a mystery, no crohns at the time, no birth trauma etc...



Is there a simple test to show crohns to rule it out?





Rach xx

Hi Rach,

Theres mo simple test for crohns or UC. Its a series of blood tests, endoscopies, colonoscopies etc. Some of your symptoms are similar to crohns but actually nailing what the root cause is should be left to a gastroenterologist. Crohns disease affects the digestive tract from the anus right through to the mouth. Some of us are lucky so to speak that it was contained in the colon/rectum area, oother poor souls get it in the mouth throat and suffer badly from ulcers and pain. UC is mostly cotained in the colon. Similar to crohns except it attacks the colon.



So sorry chick I might not have been much help to you except for some information and maybe where to find out.



Take care

Thanks Steve - will have a google, but reckon I will find someone here who will be able to help more!

xx

Hi Rach,



I found this site for you to look at - http://www.aafp.org/afp/2003/0815/p707.html.



These, plus other  symptoms are one that I had. I would suggest you see you GP or GI immediately if you feel the way you write about.



I hope I have helped you out.



Jax





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For dry cracked hands,  have you tried taking fish oil capsuel's.

At night I moisturise my hands and then put silver gloves on for the night.

you can get silver gloves from www.raynaulds.org.uk  

This is what it say's about them

These gloves are made from a specialised medical product using a safe and natural pure silver, providing natural healing. Dry cracked hands can be treated by wearing cotton/silver fibre gloves. £10.75 for 2 pairs.

Staying Hydrated with an Ostomy with LeeAnne Hayden | Hollister

Lottage -



It's been nice to have you in the community.



I forgot how you got the ileo but having that alone causes the symptoms of diarrhea and such. No colon no formed stool.



As Steve said Crohns is ruled out by the scopes, SED rates, fever, chills, etc. They can see our lesions in the digestive tract. Mine was confirmed when I had my first bowel resection as they were able to see the celluar changes all the way through the bowel wall.



However, you have several other autoimmune chronic illnesses with major symptoms. It must be frustrating to try to see how it all works together if it does. You poor dear.



I must say i know others with automimmune illnesses like fibro, lupus, crohns, and arthritis we all seem to have similar responses to similar meds. Somebody smarter than me must be working a correlation.



We don't know the direct cause of Crohns yet. We don't all have the same symptoms. We don't have a simple blood test to confirm it yet. We don't even have the same methods of treatments yet!



Most of all we don't have the answers you are seeking. It took my doctor two years of tests and a surgery to confirm mine. You certainly can't find confirmation here with an online forum or on Google.



I too recommend seeing a gastroenterologist.



Let us know how it goes.

Best,

Imperfect

Hey Rach....there's some really good info pouring in here....It is unfortunate that Crohn's is still such a big ugly mystery  

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      We have many of the same symptoms (from whatever is at the root of our problems) .....that doesn't mean you have Crohn's, I sure as heck hope not, but the reason I bring it up is because I have found that in dealing with many of these things, both Milk Thistle and Fish Oil has helped many of the symptoms we both share on your list.   Wanted to toss that into the mix in case you want to give it a try

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   You sure are dealing with a lot, stay close to us and let's keep comparing notes in here....the info exchanged among patients CAN be very helpful, indeed, and sometimes more helpful than what is read in books or heard from our doctors....and also keep in mind, each doctor has their own angle on certain things regarding explanations and treatments, and general diagnosis.......hence, another good reason those suffering from our types of problems can often learn MORE from each other

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Thanks all for your replies .....



Got a new load of meds to try for this reflux last Monday - going back again next MOnday as it has made things worse! The taste in my mouth is more horrible than before and I am now having too take a bucket to bed just in case I am sick as I now feel as though I am going to be.



Suspect I will need a scope at some point but that would be one procedure I would not be able to tolerate!



Will let you know how it goes, but still suspect heading for hospital visit in the nearish future as I am now passing wind where I shouldn't be able to!



Thanks again



Rach xx