Experiences with Parastomal Hernia Treatment?

Replies
5
Views
2178
john1947
Jul 07, 2020 1:09 pm

Living with a parastomal hernia, has anyone had treatment? If so, what was the outcome?

Maried
Jul 07, 2020 6:58 pm

I have had two repairs. The first one did not last more than a year. The second one has been about 16 years. There is still a small hernia, but I cannot see it. When I was having a colonoscopy, they let me know. Find a surgeon that has experience with these types of hernia repairs. The first one was the size of a cantaloupe! It happened after I had 2 children very close together.

Gray Logo for MeetAnOstoMate

3 Steps Every Ostomate Should Take

1. Join MeetAnOstoMate.org to connect with others who truly understand.

2. Register on manufacturer websites for free samples and product news.

3. Sign up with your local or national ostomy association for expert support.

lovely
Jul 08, 2020 3:29 am

Hi John1947, I have not had that problem, but just wanted to wish you the best. Hope you can find some answers. Stay safe.

Greenville
Jul 10, 2020 1:22 am

Hi there, I had two repairs within 5 years of each other. I had a mesh repair by a very qualified surgeon, but come to find out, if you have Crohn's disease, your body somewhat rejects mesh implants or foreign bodies. That is how my parastomal was repaired. I became very ill last year, and the mesh had infiltrated my small intestine. I was very sick. He removed all that and relocated my ostomy to the other side, just a caution. I was in lots of pain through this. If you can hold off, I would try and live with it if you can. My situation is different, but just wanted to give you some insight. Use hernia belts for ostomy if you can.

suzeekew
Jul 10, 2020 8:12 pm

I get granulomas with absorbable stitches, so I had to have an extra surgery to remove the granulomas. I can only imagine what a mesh implant would do. My peristomal hernia is large and I have to wear a belt to function. My intestine is in the hernia. The advice I have gotten is, if I have symptoms that are acute, call an ambulance and go to the ER because I may need emergency surgery. The ER will give tests to decide what to do. In the meantime, it is watch and wait. My best advice (which I wish someone had told me) is: Start wearing an ostomy belt when you first find out you have a tiny peristomal hernia. Don't wait until it has grown! I don't want you to be looking at what I am dealing with now.

 

Living with Your Ostomy | Hollister

Play
Blazest
Jul 15, 2020 6:52 pm

Mine's about the size of a baseball now. It didn't help that I gained some weight, although I'm not obese. I could just kick myself for gaining it all back; what an opportunity after losing 35 pounds when sick! Anyway, it's getting worse. They put in a biological mesh at surgery and another one about a year later. Neither held. I'm not sure what to do next. I'll be on Medicare next year. I have a colostomy from diverticulitis and it's pretty far down, so I'm thinking plastic mesh might work without rejection. Thoughts?