Finding Joy in Unexpected Ostomy Appliance Challenges

I had a situation where I was out running errands today and my pouch system moderately failed on me. I have a few safety nets in place (I keep an "emergency kit" in all of my vehicles). But this time, when I left the house I did not think about stuffing my pockets with extra bags, and frankly, I did not really think about my ostomy as I was getting ready to leave.... I just left.

It's strange that I can actually be in a place mentally where my appliance is not so "top of mind"; And that when a "situation" occurs, I can just fix it.... move on.... and not get too rattled anymore.

The fact that my appliance was such an afterthought, even during a mild breakdown.... That makes me happy

Hi Anonymous,

It's great to hear that you're finding joy and peace of mind even when unexpected challenges pop up. This community is full of supportive folks who understand exactly what you're going through, so you're definitely in the right place for advice and encouragement.

It sounds like you've reached a wonderful point where your ostomy doesn't dominate your thoughts, and that's a huge win! Having those emergency kits is a smart move, and it's impressive how you've adapted to handle situations calmly. It's all about finding that balance and being prepared, which it seems like you've mastered.

Joining this website was one of the best decisions I've made. The support and shared experiences here have truly changed my life for the better. I hope you find the same comfort and camaraderie!

     That's amazing! I'm so happy for you! (Not the fail of course. 😂) What a great space to be in. ❤️ It's hard to explain to non ostomates that constant thought at the back of your mind. Sometimes it invades your dreams, or is the main conscience thought. I'm glad you got to feel normal, and free. Definitely something to be happy about. 🥰

-Rachel

I can totally relate! {{{Hugs}}}

Yes, I totally relate too. I think getting to the point where you can forget your bag exists is an accomplishment. As long as you have thought ahead and have a backup plan in place, i.e., an emergency kit in your car like you do, or an extra pouch and adhesive remover in your inside jacket pocket like I do, you will be covered in most cases. I've been out for long walks when it suddenly occurs to me that I don't have anything with me, just been lucky so far. Then there was the time I had a minor leak; I thought I could probably get home before it was a problem, but decided to use the extra one I had in my pocket and change in a store washroom. I got it out to prepare to make the change, and suddenly realized that I hadn't cut the flange to size! Don't make that mistake, fellow ostomates! I made it home okay, and won't do that again!

Terry

I order pre-cut wafers. So nice not having to cut holes.

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