Struggling with a Stoma: Anyone Else Feeling Overwhelmed?

Replies
3
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618
SSG
Apr 18, 2022 3:40 pm

I’m I the only one that hates this? I find it difficult it goes 24/7 up and down all night. I use do CrossFit before Eddie now I’m terrified I would have an accident . Gaining weight having troubles getting my self up to go to work each day. Ppl see you say oh your looking good while entire time I’m screaming in my head. Not looking for sympathy just need vent and what better place than ppl have stoma’s 

AlexT
Apr 18, 2022 5:06 pm

You control your life, not your stoma. Get up and get moving, the only limits you have are what you put on yourself. Take every breath God gives you for what it’s worth, cause tomorrow may never come. Smile, enjoy the day, and do what you enjoy. 

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Past Member
Apr 18, 2022 7:45 pm

I can only take a guess but you could have depression have you spoken to Dr or had any counselling....even just talking about how your feeling on here and with family and friends can help....there's nothing you can't do with a stoma just take it easy and 1 step at a time until you gain your confidence back...could you you do shorter session of cross fit to start with?...other than work are you getting out seeing family/friends and days out weekends away to build your confidence  

TerryLT
Apr 18, 2022 9:45 pm

Hi SSG,  There is so much you don't say here.  I don't know how long post-surgery you are, but there is physical healing and then there is emotional and psychological healing that can take much longer.  As Alex said, there is nothing you cannot do as an ostomate.  It is helpful to have a support group of people who understand what you are going through, and can help you with practical suggestions and advice, and this site is wonderful for that.  Ultimately though, you need to take the steps to get yourself back out there, living the life you had prior to surgery.  Once the physical healing is complete, 6-8 weeks at least, there is no set timeline.  You need to move at your own pace.  I am just over two years from my initial surgery, and it was slow going for me, but I am back to my pre-surgery life for the most part.  I do pretty strenuous workouts at the gym and swim regularly.  Covid has interfered of course, by I am resuming my social life, getting together with friends, engaging in normal activities.  Many people in my life don't even know I have an ostomy, but my close friends do, which adds a comfort level that is helpful in social situations.  I've never had an 'accident' in public.  I know that it is a possibility, at some point, law of averages and all that, but I try to be prepared, carry an 'emergency kit' in my car, in my purse, or inside jacket pocket, whenever possible.

As Damian said, it is also possible that this is something you cannot conquer on your own, and perhaps you should talk to a doctor or counsellor, there is certainly no shame in that, and it may be just what you need to get your life back.  You definitely don't need to stay where you are, and there is life after ostomy surgery!  I wish you well.

Terry