Graphic Photo of My Stoma's Condition

Please be warned about the nature of my photo. It shows my stoma with two weeping sinuses just below it. Just an idea of what I'm going through again. Any suggestions on how to fix these horrors?







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Omg! Ouch! How in the world did that happen????

are they fistulas?

I have 18 inches of mesh behind the stomal area. It is causing irritation and this is the result. The surgeon saw the last one, which was up against the stoma, and did nothing. So I'm doing nothing, just suffering, and they call it a weeping sinus.

Bloody hell Gus - are you managing to keep a bag over those 3, and did you say it was a reaction to the mesh.....?

I am rapidly going off the thought of having 'anything' done regarding my hernia - was this stoma a resited one too, or did they just repair the hernia around the original stoma? I have also read where they leave the mesh area open in order for the skin tissue to grow over and mix with the mesh over several months - not sure I could handle that either...

Um, decisions, decisions.... presumably, as your skin is so wet, the damn bags aren't sticking too well either?

Big hugs mate xoxoxoxox

How to Manage Emotions with LeeAnne Hayden | Hollister

They are sticking OK, Rach. I was in the shower when that was taken. Bloody hurts like hell though, a stinging burning pain that leaves you feeling really farked. Never mind, I'll hang out for Chrissy Day then think about going to the hospital and see what they can do. Needless to say, I'm fairly pissed off with it all.

I bet you are ..... big hugs



Rach xxxxx

Maybe the stoma can be relocated to the other side? Of course I know this is not as easy as it sounds but it may end your suffering once and for all. I've had two stoma revisions since my original surgery in 1978 and they were much easier than the original operation.

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  Oh Gus, I have seen worse. The stoma looks really good, but WTF are they going to do about those little f***s... I have had more surgery because in the past I had a huge ulcer near my lovely stoma (Chezza). I have got my pouch on the other side. I bet they might do that, Gus. Yes, have your Christmas day, then get going. Anyone with a stoma has enough shit, so when these things happen, BANG, it did my head in big time, so I understand a bit more. My G.P. helped me dress the wound with a Coloplast square thing. Sorry, it was in 2001; I can't remember what it was called. Go to the GP; mine was better than the stoma nurse. I got it dressed every 2 days. It's a Coloplast; you can cut it. It soaks up the crap stuff.

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Get a stoma on the other side. Gosh, I survived it even though I am sometimes insane. NOT A PROBLEM, Gus. Keep us up to date. Good luck, Merry Christmas, love Mare - Mooza from sunny Melbourne

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Oh Gus -- those suckers look deep.

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I'm giving you a big hug and hoping the doctors will do something after Christmas. From what I've read, weeping sinuses don't usually dry up and close... surgery is most often required.



Is that what you think you're up against?



Now I know what my doctor meant when he said that unless hernias around the stoma are huge/very intrusive to the appliance, they leave them alone because surgery can cause more problems.



Beatrice

Damn!

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I wish there was some useful advice or input I could offer that would make this situation more bearable and less dire, but I have never dealt with this issue of "weeping sinuses" or anything like that. I remember at one time when Tyler was post-op, he developed an infection in the incision, and there were "tunnels" forming beneath his wound through which pus was flowing. Gosh, sorry, I know how gross that is - but is that similar to what you're describing here, or is what Tyler experienced something completely unrelated?



I wish with all my heart that you lived near me because if so, I would tell you exactly which specialists you should see, which ones you should avoid, and could probably give you some advice regarding good surgeons. But alas, you are so far away.



Your health issues as they relate to your ostomy have gotten so out of hand. I continually find myself wondering what kind of doctors and specialists you have seen, and whether or not there might be someone better in your area of the world. Surely there must be?



*big hugs* to you. Try not to let this spoil your Christmas, although I know it's difficult.



Liz

Janice is right, dear brother, those are fistulas
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. I had those next to my stoma as well when I was a teen, and my doctors in two hospitals told me they were fistulas due to Crohn's disease... different ways to get them to heal and remedy the situation... oh bro, I am so sorry you are dealing with this
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Man Gus, that looks sore. You sound like me; I would be hanging out for Christmas Day too.

It's sore as hell, but pain relief from the chemist is taking the bite out of it. I am working tomorrow and Christmas Day ($40 p/h), so I will have to stay strong. I'm going to get a second opinion when the new year starts and try to get them fixed.

Well we want you healed and feeling better soon bro.....we wuvs yah....hate to see you in so much pain all the time

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Without being poofy, Gus—my heart really goes out to you, mate—I shall certainly be thinking of you at Christmas and raising my glass to you for an early recovery.

Just you take care, Big Guy!!!..........................Pete.

I'll second that notion - both Tyler and I will be thinking about you over the holidays and hoping for a speedy solution to this problem. Please hang in there Gus - this bad period has got to end at some point!

I had no idea something like this could happen, Gus. I'll be praying for you, man, and for all of us mates also. I'd like to say thank you for sharing this to open our eyes to things that might be down the road for some of us. Hang in there, you will get better!!!
Merry Christmas
Dan

Thanks, everyone. I'm trying an iodine powder to try and dry them up a little. I have 8 wafers left to last me until the 10th of January, so I have to make them last if I can. Have a merry Christmas, everyone. I'll hang in there only because the alternative isn't worth thinking about.

Wow, they're mean looking

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(



I had a tiny fistula with my first stoma (temp ileo) which remained hidden for months, it really was that small, hidden by a small bulge of the closed other end of the loop.  Output used to sneak out under the adhesive and create a small escape route meaning daily leaks.  My skin was so sore and itchy and I'm guessing that's a fraction of what you're feeling.



Is paste any use to sort of block the holes up at all?  That's how I managed with mine, once we figured out the problem, but it was right around the edge of the newly made opening, and as I say tiny by comparison

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Rotten time to have a problem when medical appointments are so hard to get due to the holidays.  I hope you manage to get enough relief from the pain to enjoy yourself.

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This is what a fistula looks like? I had a fistula before any surgery in 1995. I had a fistula from Crohn's as well, but it came in the form of my belly button turning yellow. I got home from work, living at my mum's again, lol, at the time, so I did what I didn't think was a bad idea. I popped the yellow infection, thinking it would be like a small sore. BANG! All my intestinal shite came out. My mum vomited (thanks, ma) heheheh, so would have my insides

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Look at thatmare, mooza 2010.

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Gus, if you run out of the base plates, ring the company up to send you free samples or even tell them you want more

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Mare xxxxx

Thanks Mooza, I think I can't get through. I filled them with paste, so hopefully I'll get a couple of days' wear out of the ones I have.

Hi, I am a  new member.  I think it is cool that you can post the pics on this site.  Your pic speaks volumes about some of the complications we suffer from.   I have had my share of bad stomas & fistulae.  For me, things that did not heal over time were best dealt with with a stoma revision - in my case anyway.    But that was several years ago, so make sure you get advice from a few docs that are up to date.  For example I heard there has been work with some type of surgical grade fiber & glue - who knows. I would go so far as to send that picture around too.  Good luck.