I have had my ileostomy for 7 months now and I have two more months to go. Well, at least I think I do. I have an appointment with my surgeon on January 18th to see if he will still be able to reverse it. It has been so hard having "Stubby da Stoma" as you guys already know. I am OCD and a slight germaphobe, so I have to change my disc every day. That has been costly because insurance won't supply but so much, but I can't put a price on my peace of mind. If I could change my bag ten times a day, I probably would, but I am back to work now so I can't. I can't deal with my bag in public restrooms, which is why I live 2 minutes from where I work and will use any lunch or break time to go home, take a bath, and start fresh and new all over again. I take a little something from my doctor to get my head right when I just can't get home to take care of Stubby. It has been a rough year; I almost lost my marriage, dialysis, and stoma all in the same year and completely in reverse order. Guess you can't blame someone for trying to stick it out with their ostomy spouse but have doubts. I would like to think if the roles were reversed, I would be able to be there for my spouse if he were the one with the ostomy, but I can barely stand myself. I don't know what it is about my state of mind right now, I have been a trooper about the entire thing. Still going to work in designer clothes, hair and makeup, and nails done, and no one at work would ever believe it, but it seems the closer I get to knowing whether or not I can have Stubby reversed, the more anxiety I feel. God, please give me the strength to deal with the decision either way.
idsb2000
Dec 25, 2009 10:20 am
lottagelady
Dec 29, 2009 2:15 pm
I've only just really discovered this part of the site as I have started to write 'my story'. What you have written is so sad - I really hope that you get your wish and a reversal is possible for you. If for some reason is isn't, please use this site, for there are loads of us out here who will give you support. Take care, Rachel xx
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