Reversal Surgery Delayed Due to Lupus Complications

Hi Wonderful Ostomate Family-



I went to the doctor this morning because I was having some prominent muscle weakness and swelling in my legs and shoulders. It looks like I have a case of lupus myositis, so my reversal that was scheduled for the 18th has been postponed until we can deal with the issues at hand. I am sad, but I don't want to go into major surgery with obvious lupus problems. I've had lupus since I was a teenager; in fact, lupus is what killed my colon last December. It was lupus vasculitis that caused me to lose my entire large intestine and have the resulting ileostomy.

I'll probably reschedule the reversal for the first week in February after we figure out how to tackle the myositis.

In the interim, please keep me in your thoughts and prayers.

I'll keep you posted.


Darla

Hi Darla, sorry the operation has been cancelled. You're in my prayers, and my thoughts are with you for your lupus to subside in time for your operation. Timing is bad with health issues, I know. Hoping you make a speedy recovery. Hugs... TC, ambies.xx

Hi Darla, like Ambies, I'm really sorry to hear your reversal has been postponed. What a time for this lupus to raise its head! Of course, we'll keep you in our prayers and may everything be in order for an early February date with your surgeon. God bless and take good care, Colm

Thank you, Ambies and Colm. You two are some of the forum angels...always looking out for the rest of us and wishing us well, no matter what your own circumstances. I appreciate you very much! Hopefully, this is just a little bump in the road...I have been building momentum, if you know what I mean, for weeks now, and I don't want to lose it! I am sure you went through something similar, Colm, when your Dr. pulled the rug out from under you a few weeks ago...it's like someone stuck a pin in your momentum and let ALL the air out! Kinda takes your breath for a moment. I will try and take this in stride and continue to let things flow through me and around me like our friend Carol always reminds us...now would be a good time to put some of her wisdom to good use!

Darla

Me three ... stay positive and believe that this too shall pass. My bubble was burst two weeks ago when I developed a small infection in the stoma incision. The first phase of my reversal was done on 11/14, the day before Sunny, and was supposed to be completed 7 weeks later. I try to keep a positive perspective by believing that my colon reattachment will have more time to heal properly. It seems as though a bunch of us 'reversals' are turning into postponements!!

Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister

Fable3 - Indeed it does! I will add you to my list of sending positive vibes and good thoughts your way! Beaner had her reversal yesterday; she is one of the few who have actually had theirs on schedule! Did you have a J Pouch constructed in Phase One?
Darla

Thank you for the positive vibes!!! I'll be sending some your way in return :) I had a temporary loop ileostomy constructed and colon reattached to rectum. The second surgery is to close the loop ileostomy.

My prayers are with you, fable3, and I know everything will be just fine. I had an ileostomy first in 2008, I had it for 4 months, they did the reversal then in 2010 things got worse for me and I ended up with an ostomy and I can truly say I'm glad I have it. It saved me. I have had 36 surgeries with 29 hernias and today I have 3 more hernias, so you are lucky and strong and you will be okay.

Fable3, Sorry to hear about your predicament and wishing you a quick recovery! Just hope your postponement isn't for too long. You're half way there......think positively and it won't be too long before stage 2 is complete. Will be sending those positive vibes your way in the meantime. Best of luck and take good care, Colm

And the doctors keep on telling the patients that the reversal surgery is easier than the first one!!!??? Not for my hubby and sure looks like not for a lot of folks on this site.