My Diagnosis...

So I'm running around like a mad woman trying to gather up all my paperwork from various doctors and collect my x-rays from the hospitals I have been at in the past 6 months in order for the second opinion doctors to have all the information without having to go through all those wonderful tests again.

Of course I had to put the disk in my computer since I have already read all the paperwork on me. This is apparently my diagnosis if anyone was losing sleep over it...lol I just though I would share, not sure why but I am....Maybe because people on here would also be able to understand the jargin since my other friends have no clue...haha





The abdomen and pelvis have been scanned helically withintravenous contrast.

CT enterography protocol has been followed.



The liver, spleen and both kidneys appear normal.



The patient's had a previous total colectomy and there is a terminal

ileo-ostomy present in the right lower quadrant.



There are several grossly abnormal loops of small bowel identified. There are

multiple dilated segments with some narrow thick wall segments intervening. The

second and 3rd parts of the duodenum are involved and are dilated with some

narrowing of the distal 3rd and 4th parts of the duodenum and proximal jejunum.

There are then multiple segments of dilated jejunum with intervening

strictures. Proximal jejunal loops are aneurysmally dilated measuring up to 6

cm in diameter. The small bowel is somewhat shortened and I believe that there

may have been previous distal ileum or resection is well as the colonic

resection. There is a dilated segment of small bowel seen in the pelvis. This

likely represents more mid or distal ileum.



There is no evidence of mesenteric disease. There is no evidence of

intra-abdominal or pelvic abscess identified and no definite evidence of

fistula formation.



This no free fluid in the abdomen or pelvis.



CONCLUSION:



Pattern is in keeping with Crohn's disease with skip lesions and

aneurysmally dilated segments. The changes are most severely involving the

proximal small bowel. It is difficult on this study to assess the activity of

the disease.

You suggest an interesting point, Budd, regarding simplifying medical language. They are already creating laws in many places simplifying legal language. Your lab results are obviously written by a doctor for a doctor; and I am sure we all can appreciate the need for this. It would be nice, however, if medical professionals could learn to translate some of this information in writing so that the average layman might rise above feeling 'clueless'.  I like seeing "no evidence of" or "appears normal"; but doctors can provide us with clearer, written information so that we can play a more active role in our own health care management. At the same time, this does not relieve us of our responsibility to learn more about our own situation; and there are plenty of great resources around to help.

I must agree with your thought that doctors really should speak "our" language. However I'm thinking for many of us THIS mumbo-jumbo actually makes sense. Well I can basically understand it. But yes it would be nice if when going in for the follow-up appointment instead of the doctor saying..."Looks ok" to being told..."Well you are having some difficulty due to _____ in this area *point to area on patient* and we can clearly see that so this is the course of action we will need to take...etc etc...Perhaps people would better be able to care for themselves if they really understood what the bloody hell was going on inside and why.

budd002 the last diagnosis I got from my doctor was exactly like yours. Mombo Jumbo

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written from one Doctor to another Doctor. I spent 1 hour on the internet deciphering what it all the mombo jumbo was all about. I agree with you 100% these Doctors need to put it in simple language so we can understand what the hell their talking about. Have a great day.

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Bob

You know Buddster sometimes I wonder if my doctor even understands what the hell all this gibberish is about. I'll give you an example: I took my x-rays to the city for a specialist to look at, he didn't find much wrong but complained to my doctor about not having any acute angle shots of the lumbar spine, Ok so far, the next year I had to go back to see the same specialist and told my doc about the guy complaining about the acute angle shots. My doc said to me, Ed, you're having too many x-rays but we'll get him his acute angle shots and I had three new x-rays taken and these new x-rays were put in the envelope with last years X-rays. Now, for the fun part, as the doctor was taking the x-rays out of the envelope he managed to get the new x-rays out first and I watched him check the dates on them, but after three negatives he just kept sticking up the rest of them without checking the dates, I mean they were new, right! Of course I had a copy of my visit to this specialist even before my doctor did, real good lawyer, any way as I had an appointment a few days later with my doctor, I asked him to read the third paragraph, which he did three times and found nothing amiss until I pointed out this specialist noticed an increase of arthritis in my spine, so the question became how could he see an increase in the same X-rays he had seen the year before, and he could not have found an increase in the new x-rays because he had nothing to compare them with. When My doctor finally got the picture (pun intended) he started laughing so hard my wife could hear him out in the waiting room. I think he must have told every doctor in the hospital and said I'd make a good detective, I hope I have explained this well enough so you could see the humor in it. Have a nice day, ED

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Staying Hydrated with an Ostomy with LeeAnne Hayden | Hollister

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so budd what is going to happen that sounded like all the crap i went through my question is



as usualy what i say to the Specialists and WAT DOES THAT MEAN EXACLTY ????? what are they



going to do .. Or the usual maybe more tests or try this medicine , or maybe try that medicine



blah blah blah ..Hey what about Infliximab infusion ????

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half the time i see things they



think arnt actully exciting enough and my Prof. has said oh dont worry about that . Ya know



grrrrrrrrrr  

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x..

Ok Budd, I'll admit what little I understood I can see where you have a problem, have you had many blockages? you know the type where you wish you could pass out? If you're not being bothered with things like that, great, if not I could see where a really good surgeon is your next step, so we wish you luck and want to know as soon as possible how you make out, maybe drop me an e-mail so I can quit worrying, ok, Ed

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Think it means you got a poorly tummy Sharry! xx

I'll try to keep this as brief as possible, but I want to share with you my experience in the hospital and with a doctor.  I am an colostomy and a reversal of same "victim" and as the inmate says "I am not supposedto be here.

     1.While sitting out side one day I was having difficulty taking a deep breath

     2.wife called 911, the responded within a few minutes

     3, EMT's determined that there might be some pneumonia setting in.

     4. arrived at the emergency room and was immediately cut loose from all my clothes

     5.hooked up to all the machinery; determined that I was suffering from "congestive heart failure"

     6.given 4 injections of Lovanox directly into abdomen,(fights blood clots)

     7.sent to ICU for over night observation, and more lovenox injections.

     8.abdomen begins to swell, (remember, I am here because of "congestive heart failure"

     9.back for test,MRI.CT,X-RAY and some I dont remember,"congestive heart failure"

   10.several days of more test, head scratching, and uttering "hummmm" "congestive heart failure"  abdomen still swelling

    11.woke up late one night in the operating room,I'm thinking "congestive heart failure"?

this gonna be the big one!

    12.next morning I am informed that a colostomy had been performed because my colon had been pierced 8 times,"congestive heart failure"

    13. now all kinda complications set in and I remain in intensive care for the next 3 months,

my wife finally almost kidnaps me and brings me home to a hospital bed and round the clock care, went thru all C.D.'s and savings account paying for nurseing at home,"congestive heart failure"

    14.one year later, got my reversal and went on to re-cooperate(?), and am in great shape now,"congestive heart failure"

    15. POINT IS-I lost almost two years of my life and a ton of money simply because some medical person did not know the correct procedure for giving an injection in the abdomen

    16.no heart problems, am 74 years old and my cardiologist can't understand why.

Don't try to fix it, if it ain't broke!

Jack,



Just wondering as to why they would keep  injecting you in the stomach? I've had plenty of blood thinners in my life and I always get them in my arm. Bruised like I was beaten afterward but I have never had an injection of any type in my stomach. I'm too afraid, think it would be a very sensitive spot. I give myself B-12 in butt, Humeria in leg, test blood in finger. How is the old ticker anyway??



Sharry

Hello Sharry,



I'm not that much into cardiology,  but Luvonex is supposed to disolve blood clots.



They were treating me for congestive heart failure,  and that is a build up of fluid around the heart,  making it hard for it to beat,  sooooooooo they decided to inject me directly where they thougt the clots were.   Made sense to them.



However there is an approved procedure for giving the injections/

1; pinch up the skin on the side but still over the abdomen.

2;push the needle in on a 45 degree angle so as not to penetrate anything.

however as I sure you have seen in all the  movies, haste is of the utmost importance.every thing is push, push,  hurry,  hurry "lets save this guy at all cost!"

They mean well but guess what....they are interns!

Of course with all those holes in my colon, I was leaking like a sieve, and intestinal fluids don't mix well floating around in the abdominal cavity.



BUT  the old ticker is doing fine, thank you.



p.s. just remember in your hospital stays, if you hear the word Luvonex,  remember what I told  you



God Bless



Jacksprat

"I'll try to keep this as brief as possible, but I want to share with you my experience in the hospital and with a doctor.  

I am an colostomy and a reversal of same "victim" and as the inmate says "I am not supposed to be here."



What an ordeal, Jack! Your loss but our gain.

Prime,



you know, I thought it was an ordeal too,  and it was, but it's over now.  And my heart goes out to the souls I've met in here that faired so much worse than I.  Never having had any contact with the procedure I knew nothing about it,  but some of the horror stories I have read in here...............Man,  some have a lotta guts.





Thanks for the kind words, Prime



Jack

Hi All,



I sympathize with all of you re: Dr rhetoric &  medical "mis" adventures.  Since I became ill at the age of 12, with surgery at 15 & then again at 19, I've been on the "ride" for more than 60 years...



Some incidents were "funny....others not so much.



When I was pregnant and in labor, I told the nurse I couldn't have an enema, had no rectum.  She told me to roll over, or she'd get someone to help her.  It took some convincing...



When I was 12, my doctor told me that if anyone ( interns) started to do something to me, that I didn't agree with to just start screaming.  That advice has worked well for me...then, and although modified, even now.  



But I still fell victim.  4 years ago, I developed persistant leg pain when walking as well as breathlessness.   Preliminary diagnoses were,  heart failure ( swolled legs),  compartment syndrome ( sports injury?), Neuropathy ( Diabetes) or PAD , peripheral artery disease.  Cardiologist first, ruled out heart failure...  Took 3 months.

Pulmonologist, - diagnosed with undertreated asthma.  New meds, but was still breathless.

Endocronologist ruled out Diabetic neuropathy...

Orthopedist ruled out  pain caused from degenerative disc disease or Osteoporosis...

Podiatrist consultation for new orthotics....didn't stop the leg pain.  

Vascular Surgeon....after specific tests determined that I didn't have PAD...even though i had all the symptoms....

Suggested that perhaps if I lost weight and get "fit" the pain would go away.  So I decided to just go on with life, lost my job, was Hobbling, almost needed a walker, but joined the gym, lost weight, began swimming, and did cardio minus the "impact".  



After 3 years....not working $30,000 in debt from medical insurance costs, but lost 40 pounds, and was more "fit".  But still had leg pains.   I cried to my Primary dr....and begged him to put me on PAD medication, and if it worked great, if not, I'd go off of it.  He agreed, and three days later I was pain free.  



I hate that Vascular Surgeon, who was so Insistant that I COULDN"T have PAD, and am upset with myself for not being more pro active on my own behalf at the beginning.  They don't know everything.     So my advice to all, is stand up for yourself, ask questions, don't let yourself be intimidated....   You have every right to understand what your condition is, and if the doctor doesn't communicate well, he's not the one for you.  



Happy Mother's day to all the moms out there....