Hi my name is Kakie
I am a fairly recent ostomy patient I had emergency surgery Apr 4/14 to safe my life .I will be honest I am having a very hard time adjusting to as i call it thing ,sorry i can not find it in my heart to give this thing a name when it causes me so much grief .I don't have a problem looking after it as i have looked after worse then this over my years as i cared for terminally ill patients as well as chronic patients which in the end landed me here in a way :( ,I have not freaked out when i find this thing bleeding on a regluar basis several times a week , I have not freaked out when finding small white lumps on the under side of this thing . What bothers me is the prolapse/ how ashamed of myself the way i look now when i do go out in public (this thing sits high up on my abdomen and looks and i don't mean to insult anyone please don't think that but this looks like a male part that is extremely happy to see a beautiful woman
:( .I was wearing the new SenSura Mio products and have gone thru each type and as of today I have to give the last type up :( .This prolapse ranges from 4 to 5 inches long and now it has decided to spread in width as well again this time from the middle up to the tip and can sit at 6 in wide if i stand up and do things , like walk . I love to walk and walk 4 miles a day at least was till this week when winter hit and as we live on a back road that turns to an ice skating rink not sure how much i will get in now :( but to do that walk or ride my stationary bike i need to wear a girdle well i found out with this new appliance that is going to be hard because once you put anything over it to hold this ta majorhing in it fills with air and as my output has been extremely high since Sat and it is not the runny type it is thick and pasty and i have seen it in major blow out once when i first went to the medical floor after my surgery , it took 2 1/2 hrs to clean me up
I have tried to find a group to go to so I could work thru my difficulities with this thing but there is no group in our local area ,so i was told to find a group on line maybe but i am better at talking to some one in person face to face , so i guess for me it is to learn how to deal with this on my own but it is hard .I have had some say i am depressed , I am not , I am angry with this thing , it may have savedmy life but it took many things away from me ,I am angry at myself as well for ending up this way , i am frustrated with not being able to do the things i used to do ,I don't like not being able to go out and feel ashamed of how i look .I am not a beautiful woman nor am i even pretty but i always took care in the way i presented myself and that has been taken away from me as well with this thing . I just need to talk verbally to work thru this and that is not going to happen and truthfully I hate to write
till later
kakie
I am a fairly recent ostomy patient I had emergency surgery Apr 4/14 to safe my life .I will be honest I am having a very hard time adjusting to as i call it thing ,sorry i can not find it in my heart to give this thing a name when it causes me so much grief .I don't have a problem looking after it as i have looked after worse then this over my years as i cared for terminally ill patients as well as chronic patients which in the end landed me here in a way :( ,I have not freaked out when i find this thing bleeding on a regluar basis several times a week , I have not freaked out when finding small white lumps on the under side of this thing . What bothers me is the prolapse/ how ashamed of myself the way i look now when i do go out in public (this thing sits high up on my abdomen and looks and i don't mean to insult anyone please don't think that but this looks like a male part that is extremely happy to see a beautiful woman
:( .I was wearing the new SenSura Mio products and have gone thru each type and as of today I have to give the last type up :( .This prolapse ranges from 4 to 5 inches long and now it has decided to spread in width as well again this time from the middle up to the tip and can sit at 6 in wide if i stand up and do things , like walk . I love to walk and walk 4 miles a day at least was till this week when winter hit and as we live on a back road that turns to an ice skating rink not sure how much i will get in now :( but to do that walk or ride my stationary bike i need to wear a girdle well i found out with this new appliance that is going to be hard because once you put anything over it to hold this ta majorhing in it fills with air and as my output has been extremely high since Sat and it is not the runny type it is thick and pasty and i have seen it in major blow out once when i first went to the medical floor after my surgery , it took 2 1/2 hrs to clean me up
I have tried to find a group to go to so I could work thru my difficulities with this thing but there is no group in our local area ,so i was told to find a group on line maybe but i am better at talking to some one in person face to face , so i guess for me it is to learn how to deal with this on my own but it is hard .I have had some say i am depressed , I am not , I am angry with this thing , it may have savedmy life but it took many things away from me ,I am angry at myself as well for ending up this way , i am frustrated with not being able to do the things i used to do ,I don't like not being able to go out and feel ashamed of how i look .I am not a beautiful woman nor am i even pretty but i always took care in the way i presented myself and that has been taken away from me as well with this thing . I just need to talk verbally to work thru this and that is not going to happen and truthfully I hate to write
till later
kakie