hi all
just a short note about me, i have had my colostomy since january 9 2009 it was a pain in the ass the whole time. i never had a bag stay on me for more then couple hours for the whole time i have had it. i complained to the doctors to fix it the whole time. i had a 4 inch waffer and pouch and i had to cut it from side to side the shape of an eye plus hung out my stomach 7 inches into my bag, so it never sealed no matter what i did. so the about the 6th of dec 2015 on mom and dads aniversary once again i ended up in the hospital i lost 2.5 pints of blood from my wounderful stoma. they couldnt find the tear after 2 days in the hospital it sealed its self up. back to the doctors i went complaining about ok look now this happen to me. i went to the VA hospital in salt lake city utah for the first consultation ever about what my options could be.
at first it was battling on a reconect and trying to use my butt again i told him it been a long time since used my butt and i reasearched about a reversal and still on the low end of a percentage of working i wasnt up for that at all. then i brought up that i also still have the disease (Hirschsprung's disease) in my intestine. if it went south on me it will be faster to find again. i wasnt going to take all the meds they say to take to poop(even tho they were over the counter) that might work or might not be a normal poop or know where every bathroom is house to house and crap my pants.
the doctor was fair and good to me cause when i brought up there is no 100 percent guaranteeit would work or a higher chance to fail still had a chance to end up like a man i met that has to wear a daiper cause sometimes he doesnt know when he bowels deside to just take a dump and he shits his pants. so i told him i was happy with my bag i just wanted a more normal size stoma, and a smaller bag and waffer to wear i could do other things that i enjoy doing and to have other options of bags supplies stoma protections and many other things.
so on may 20 2016 i got my wish, he did a revision and resited my stoma i have a small butt now and i can wear my new size waffer and pouch for 2 to 3 days which is a blessing all by itself. not only am i still healing i have been able to enjoy more outdoor things, i like to do without having my friends smell me when the bag would blow out. i have some really good friends that just would carry some sort of air freshner to ease the pain from the toxic smell i would have. they understood that i would take longer to get ready to go outside, so now i enjoy my bow hunting way more then before my bag isnt a big pain in the ass, no more blow outs from the heat or movement from twisting and getting up from a chair. i still cant work cause of the weight restrictions i have to have so i dont cause anotherparastomal hernialike i had before and cause a hernia where the old site is. i just have to realise that i cant do everything i used to do. so i have to have help when it comes to picking things up that are heavy yea that isnt as easy as it sounds either:) but things are much better now time to find that little gal pal that will put up with the crap and do my favorite things
just a short note about me, i have had my colostomy since january 9 2009 it was a pain in the ass the whole time. i never had a bag stay on me for more then couple hours for the whole time i have had it. i complained to the doctors to fix it the whole time. i had a 4 inch waffer and pouch and i had to cut it from side to side the shape of an eye plus hung out my stomach 7 inches into my bag, so it never sealed no matter what i did. so the about the 6th of dec 2015 on mom and dads aniversary once again i ended up in the hospital i lost 2.5 pints of blood from my wounderful stoma. they couldnt find the tear after 2 days in the hospital it sealed its self up. back to the doctors i went complaining about ok look now this happen to me. i went to the VA hospital in salt lake city utah for the first consultation ever about what my options could be.
at first it was battling on a reconect and trying to use my butt again i told him it been a long time since used my butt and i reasearched about a reversal and still on the low end of a percentage of working i wasnt up for that at all. then i brought up that i also still have the disease (Hirschsprung's disease) in my intestine. if it went south on me it will be faster to find again. i wasnt going to take all the meds they say to take to poop(even tho they were over the counter) that might work or might not be a normal poop or know where every bathroom is house to house and crap my pants.
the doctor was fair and good to me cause when i brought up there is no 100 percent guaranteeit would work or a higher chance to fail still had a chance to end up like a man i met that has to wear a daiper cause sometimes he doesnt know when he bowels deside to just take a dump and he shits his pants. so i told him i was happy with my bag i just wanted a more normal size stoma, and a smaller bag and waffer to wear i could do other things that i enjoy doing and to have other options of bags supplies stoma protections and many other things.
so on may 20 2016 i got my wish, he did a revision and resited my stoma i have a small butt now and i can wear my new size waffer and pouch for 2 to 3 days which is a blessing all by itself. not only am i still healing i have been able to enjoy more outdoor things, i like to do without having my friends smell me when the bag would blow out. i have some really good friends that just would carry some sort of air freshner to ease the pain from the toxic smell i would have. they understood that i would take longer to get ready to go outside, so now i enjoy my bow hunting way more then before my bag isnt a big pain in the ass, no more blow outs from the heat or movement from twisting and getting up from a chair. i still cant work cause of the weight restrictions i have to have so i dont cause anotherparastomal hernialike i had before and cause a hernia where the old site is. i just have to realise that i cant do everything i used to do. so i have to have help when it comes to picking things up that are heavy yea that isnt as easy as it sounds either:) but things are much better now time to find that little gal pal that will put up with the crap and do my favorite things
