Feeling useless

Replies
5
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553
JESAC78
Feb 14, 2024 3:08 am

I have so much pain in my small intestine because I have a new obstruction from Crohn's, which I fully understand. I haven't been having symptoms since I had an ileostomy for 13 years now. So, they put me on TPN after a 3-week hospital stay, sent me home on it, and scheduled surgery for the 21st to remove this obstruction and possibly get a new stoma for the fourth time. I keep getting hernias. I'm so down about it all; I can't get out of bed except to go to a doctor's appointment.

I feel hopeless. 😔

Beachboy
Feb 14, 2024 5:03 am
Very helpful

Hang in there.  Many Ostomymates have had similar feelings.  I felt hopeless and lost when I was in the hospital last year.  Each day becoming weaker, with intense pain.  Doctors couldn't figure out what was wrong.  There came a point when I couldn't take it anymore.  I had lost 66 pounds, didn't eat or drink anything for a month, living on TPN.  In the depths of my despair, I asked God to help me.  As much as things went wrong for me, things suddenly went right.  I survived.  I have a hernia too.  Sucks.  But I live with it.

Never give up hope.  If possible, get a second opinion about your current situation.

 

Eagles2023

Yeah wow, this site helped so much, I mean really who do you know with this infliction? No one, felt so alone and disgusted by myself every turn.
But it ended up being so damn strengthening, I got fucking moving, really only another choice.
That's
Honesty
Truth
I was damaged by a procedure and ended waking with this, I understand all of you.. perhaps you had to have it, I get it.. doesn't matter either way.
Just wanted to share that

JESAC78
Feb 14, 2024 7:16 am

Thank you 💗

Beachboy
Feb 14, 2024 11:12 am
Very helpful

While in the hospital, my wife gave me a card with this Psalm.  I read it nearly everyday.

Psalm 18:6, 16

In my distress I called to the Lord;   I cried to my God for help.

From his temple He heard my voice;  my cry came before him, into his ears.

He reached down from on high and took hold of me;  He drew me out of deep waters.

Morning glory
Feb 14, 2024 12:50 pm
Very helpful

JESAC78, I agree with Beachboy. Please heed the advice. I love that Psalm too. You aren't  alone. 

 

Stories of Living Life to the Fullest from Ostomy Advocates I Hollister

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Downtown
Feb 15, 2024 8:06 am

Hang in there JESAC78, it's a one-day-at-a-time battle.