Diarrhea After Ileostomy: Anyone Else Experienced This?

Replies
9
Views
111
Chiquis
Mar 23, 2025 8:01 pm

I have an ileostomy (2019).

Twice now I've had diarrhea that came from my rectum. I think it must have been food toxin. Has anyone else experienced this? My oncologist was at a loss.

Join MeetAnOstoMate with 39,559 members.
IGGIE
Mar 24, 2025 12:14 am

G-Day Chiquis,

That is most unusual and needs to be looked into a bit more. Is your ileostomy permanent or not?

Regards, IGGIE

Gray Logo for MeetAnOstoMate

MeetAnOstoMate.org is the only place where people truly understand you. It's because everyone here has an ostomy.

Many come here for advice or to give advice, others have found good friends, and some have even built long-lasting relationships.

Privacy is very important - there are many features only visible to members.

Create Account

Beth22
Mar 24, 2025 3:51 am

Hey there, the only thing that should be coming out of your bottom end is mucus and sloth. You shouldn't be having any kind of BM. I would go see your surgeon.

Axl
Mar 24, 2025 10:07 am

Hello Chiquis

As the others recommend, always run any concerns by the professionals for your own peace of mind; that's what they are there for.

Chiquis
Mar 24, 2025 2:32 pm
Reply to IGGIE

Yes, it's permanent.

 

Staying Hydrated with an Ostomy with LeeAnne Hayden | Hollister

Play
Chiquis
Mar 24, 2025 2:35 pm
Reply to Beth22

Yes, it's permanent.

I was referred to a surgeon who recommended a reversal. However, I nearly died during the first surgery. I was hospitalized for 60 days. The prognosis was poor. I'm 76 and scared.

Nightrose
Mar 24, 2025 8:56 pm
Reply to Chiquis

Hi Chiquis,

Sorry to hear this. Hope it gets sorted quickly for you.

I have no rectum, but I do have a chalky beige color discharge from the wound (hole) where I was sewn up, which my consultant said I could have for years.

Beth22
Mar 24, 2025 10:52 pm
Reply to Chiquis

I am really sorry you have had this experience that is scary. May I ask why the doctor would recommend a reversal knowing it's permanent, and what did he say about what's coming out of your bottom end?

corlsharonl49
Mar 25, 2025 12:44 am

I'm sorry you're in this unknown situation. I would be scared too. Put one foot in front of the other and get checked, like these fine people recommend. I hope you get some answers soon.

Chiquis
Mar 25, 2025 4:40 am
Reply to Beth22

I told the NP at the GI doc appointment. Then the GI doc referred me to the surgeon. Before I saw him, I had a CT scan and MRI. The surgeon said everything looks good and recommended the reversal. I'm glad that all these kind comments are finding this a very unusual and unique occurrence. It freaked me out. It happened twice during a one-month period of time.