Will I Ever Feel Better After My Surgeries?

Replies
45
Views
840
Nick&Keir Stoma
Nov 10, 2024 10:14 am

Hi everyone, I'm new to the site just today. I've been browsing on here the last couple of weeks and decided to create an account as everyone is so understanding of people's concerns and questions. So I thought I'd ask a few myself.

The topic title basically shortens everything. But it's accurate; on the 30th of September, I had my surgery to completely remove my large colon, just leaving a rectal stump and bringing out an ileostomy. Then a week later, a second surgery to remove a hernia which was causing a full obstruction in the small intestine. I'm now approximately 4 and a 1/2 weeks since my second surgery and just feel like I'm getting no better. My stomach is still pretty sore and swollen. I'm struggling bending down to pick things up off the floor. It kind of hurts if I press slightly on my stoma to burp my bag. Also, slightly unrelated, but my legs and arms are still so weak from the deterioration of the just over 2 months hospital stay. Will it ever get better? I just still feel, despite the fact I've been home for over 2 weeks, that my quality of life just isn't improving. Gone from a very active and relatively strong lad to being unable to sit up without using my arms to push myself up to get out of bed or stand up off the sofa.

Thanks in advance to those who take the time to read and reply to this long-winded post. I'm just a bit of a worrier. And will for sure have more questions to post.

warrior
Nov 10, 2024 10:24 am

You are anxious and eager. All normal. Give yourself a break. You shouldn't be bending or picking up things from the floor this early. Nope.

Yes, it gets better. Don't push or rush yourself, dude.

Plenty of others will chime in and agree.

Good to have you. Welcome. No worries about any questions. We've got you covered. We get it.

By the way, some folks here say it takes almost 2 years to fully recover from most major surgeries. I bet at 6 months though, you will feel better. Not 100%...

Body needs time to recover, adjust. The new you is coming. Be patient.

Gray Logo for MeetAnOstoMate

Why Join MeetAnOstoMate?

First off, this is a pretty cool site with 37,727 members who truly understand you.

It's not all about ostomy. We talk about everything.

Many come here for advice or to give advice, others have found good friends, and some have even found love. Most importantly, people here are honest and genuinely care.

🛑 Privacy is very important - we have many features that are only visible to members.

Create an account and you will be amazed by the warmth of this community.

  37,727 members
Nick&Keir Stoma
Nov 10, 2024 10:28 am
Reply to warrior

Thanks, man. I appreciate the reassurance. You're 100% right. I am eager, a little impatient to say the least. Just want some sort of normality back. Again, thank you!

warrior
Nov 10, 2024 10:34 am
Reply to Nick&Keir Stoma

You are certainly welcome.

It will come. You're 26... you got this, young man. I was like that and still am anxious. You learn patience over time. A long-time lesson learned too.

We can advise you on many things... it helps knowing others who have been there and done it.

It's like having the Monarch Notes? If I recall correctly...

A beeline to some facts... not fiction. This is the best place... best of folks to guide you.

It will be a ride... having ups and downs. Some confusion, too.

Always will have a helping hand here. Post whatever you need answers to.

Justbreathe
Nov 10, 2024 11:10 am

Hello and welcome! Wow, good fortune for you that you have found this site so early in your journey! And a journey it is - this group will help you along the way. There will always be an assortment of answers or opinions, and this is good. Just remember, and you will hear it repeatedly - we are all different…even though some may have had the exact surgery you had. So, with that in mind, the difference is our own body, and who knows a body better than the person living in it? In terms of healing, you are so very new in your journey - I am one who took a full 2 years to get back to what I felt to be my “normal”. I am way older than you, but prior to my surgery, I was very, very healthy. I am guessing your recovery time will be much shorter given your current ambition to get to normal quickly! Just beware, healing takes time and hernias lurk. Best wishes for a speedy recovery! jb

 

Living with Your Ostomy | Hollister

Play
Queenie
Nov 10, 2024 12:43 pm
Reply to Nick&Keir Stoma

Don't beat yourself up, I rushed in to several things because I didn't want to be a "martyr" and it was stupid. As Warrior says, you'll get there quicker if you go slower.

Shamrock
Nov 10, 2024 1:22 pm

Agree with all that has been said so far.

With an Illeistomy at first, you're going to need not to bend at the belly, but only at the waist.

You can't sit in chairs, but straddling a padded stool or toilet is fine, and then lift up with your legs.

There are certain foods you can't eat unless you risk a painful clog. Namely, anything that isn't mushy (nuts, seeds, hard meats) or has skins on it; the mushy insides or liquefied seems to be fine. Salads, seafood, fried or brined or overly salty foods, spinach, bananas, and alcohol should be avoided. Applesauce, Greek yogurt, and a multivitamin with B are your friends. Part of your intestine responsible for absorbing B was likely removed, so you need to watch your nutritional needs as well as your electrolyte levels and stay hydrated.

There are certain foods that can cause runaway diarrhea, so take it slow and see what does or doesn't work for you.

Eat larger nutritional meals between am (after a bag change if needed) when you get up and about 2 pm, then only small two-cookie-sized snacks after that to keep hunger at bay. It's so you can get some sleep and the bag doesn't overfill, forcing itself off and causing a blowout while sleeping.

Applesauce consumed some time beforehand will halt the output from the stoma to allow a bag change. So watch what you eat, when, and what comes out so you'll learn and time a bag change with a nice hot shower.

Take bird bath washcloth or lukewarm showers if you have a good bag on; sweating can cause the bag to come off. You need to keep water away from your bag until you learn how to protect it during a shower.

Be sure to dry the stoma area well before applying anything. If spewing occurs, head back into the shower to clean and wait until it stops. Sometimes having a plastic milk crate with a towel on it works well as a seat while you wait.

Sleep on your back with a pillow under your butt cheek to level the bag so it's not always draining to one side. Also, sleep slightly angled up to keep output flowing into the bottom of the bag, not pooling around the stoma. Use a pillow under the other arm as to prevent you from rolling onto that side. Eventually, you'll learn how to put on a really secure bag and thus have a little more freedom of movement.

You can use a tiny bit of antibacterial liquid soap and water to clean your bag while on the toilet. Leave a little of both in the clean bag afterward to act as a bacteria neutralizer to eliminate the smell.

If you have scar tissue, using a little olive oil or coconut oil-based lotion will soften it and reduce itching.

Take your time and LEARN LEARN LEARN. Google search is your friend. The sooner you learn everything about your new life, the sooner you can recover and be normal.

It's been a year of recovery for me from them gutting me like a fish to look around for any damage as I just fell out, no warning what it was.

Well, it's cancer, so they say. I refused further treatment because it was pointless at my stage. I was supposed to be dead many months ago but am just fine and kicking, just this Illeistomy headache that's it.

So hang in there, the first year is incredibly hard, but you do eventually heal up and can go about life.

By the way, with an Illeistomy, you're considered disabled in the US, so you can get some money coming in from Social Security.

Good luck ☘️

ron in mich
Nov 10, 2024 2:18 pm

Hi Nick, welcome to the site. There's a lot of good info here and good folks too. Patience is the key here as you don't want that hernia back. The more surgeries you have, the more prone you are to hernias and internal scar tissue causing problems. My advice is to eat the foods you like but stay away from fibrous ones like pineapple or mushrooms as they don't break down. Raw veggies can be a problem early on after surgery. Also, chew your food until it's totally broken down to mush so you will have a lesser chance of a blockage.

IGGIE
Nov 10, 2024 2:34 pm

G-Day Nick,

Welcome aboard, mate. I had my colon removed 20 years ago, and it was a long time before I was able to stand up straight, but after a few weeks, it slowly started to come good. I had a J-Pouch first but got rid of that 2 1/2 years ago and got my wonderful ileostomy, a real life changer. You might look like you're healing on the outside, but there is a lot of healing going on on the inside. Just take your time and don't overdo any lifting, and before you know it, you will be off and running.

Welcome, my friend. Regards, IGGIE

Bill
Nov 10, 2024 2:36 pm

Hello NIck.
Welcome and I love the name.
Lots of people giving you good advice, which I cannot see any point in repeating so I will look forward to reading about your progress as time moves on.
Us ostomates need to learn how to go from being patients to having patience. 
Best wishes

Bill

Morning glory
Nov 10, 2024 3:16 pm

Hi Nick, welcome  to the site. I am glad you found us so early. You have already seen what an awesome group we are. My advice  is take time to heal properly. It is still very early days for you.  No bending to pick up things off the floor, no pulling or stretching. Do not lift anything  over five pounds.  Waiting  to get back to your usual routines is not easy but you will get there. Remember  the goal is no hernias  or blockages. Chew chew chew is a mantra here. Introduce  foods that you like slowly. Stay well hydrated. Hopefully  you will be one of the lucky ones here that can eat anything they  want.  Just be aware of portion sizes.  Now that you have found the site keep chiming  in with any questions  or give any feedback.  We also like a good joke. I will also add ostomy 101 is a good site. YouTube videos are good too.

William15
Nov 10, 2024 4:25 pm

Hi Nick

I think it's very positive that you've reached out to others at this time, because to me, it demonstrates that you are dealing with both the need for, and consequences of your treatment and focusing on your recovery well, I'm sure many here will admire you for this and feel you are taking steps in the right direction.

Do remember you are still in the "aftercare" stage following your recent surgery and both rest and reflection can help with the healing, recovery and adjustment processes, so take it easy and stay tuned to this site for guidance and morale boosting chats!

My surgery, the same as yours, was 20+ years ago in the month of July and I vividly recall at the time, and for many weeks afterwards, feeling physically and emotionally overwhelmed and drained and generally uncertain, however, by the following January, I was backpacking in Mexico. I was able to kick start things and to date, my stoma has never held me back from achieving my goals.

I notice you hail from Rotherham, Yorkshire, I was born and schooled close by and attended my very first music gig there, a good memory!

Best

Will

oldtimer
Nov 10, 2024 4:50 pm
Reply to warrior

While I am replying to you, warrior, because I agree with you, it is also to the gentleman from the UK,

It is very likely that it will become better, as it does in many cases. While positive thinking can definitely be a help in recovery, we are all individuals.  We process things differently and our bodies help what the mind dictates. 

Do not despair. Give it time. There is no set time to recuperate after such an insult to the body. My best advice is to TRY (advice is cheap) to seek out things that, at least used to bring you contentment. 

They say that time heals all wounds. Most of the time this holds true if enough time elapses.  In the end, acceptance of a situation is the key and the norm.

Beachboy
Nov 10, 2024 6:03 pm

Take your time. This month is my 2-year stomaversary. I have a permanent colostomy. I'm 66.

The first thing I did after coming home from the hospital was fall. Twice. Luckily, I didn't break anything, but it hurt like hell for weeks. Then I started dropping everything I tried to grab. I had never dropped so many things in my life: keys, spoons, remote controls, cell phone, ostomy supplies, money... It sucked because I just couldn't reach down and pick them up. My cat refused to help.

When I first arrived home, I couldn't walk across my living room. Three weeks later, I returned to full-time work. It was hard, but I was tired of laying on the couch. Three months after surgery, I went on a 7-day cruise vacation. I was very self-conscious about the bulge under my shirt, but I learned no one cared. So that was good. At work a week later, I became dehydrated and passed out, smacking my head on a machine. I had an interesting ride in a paramedic ambulance. Two days in the hospital. Lesson learned: take it easy. The company I worked for freaked out and laid me off a short while later. At 6 months, I could bend down carefully and actually pick up stuff I dropped. Yea.

At 2 years post-op, I have no pain. I ride my beach cruiser 20 miles every other day. I walk several miles a week. Stay hydrated! I regained my former physical self, though I'm 30 pounds lighter than before surgery.

Colostomy is easy to care for. I don't give it a second thought anymore.

ellieroots1
Nov 10, 2024 6:31 pm

Hi there, I'm in a very similar position to yourself by the sounds of it. 

Same stage after ileostomy, today has been really tough in that I've had constant pain in/round the stoma and have barely been able to walk or stand up straight. 

My 6 week hospital stay made me an anxious wreck having previously been what I considered to be very mentally strong. And from a physical point of view, I'm a firefighter and right now it feels like I'll never be able to get back to this.

I'm sorry I haven't been able to give you a shining beacon of hope, but hopefully knowing that you're not the only one with these feelings gives you some comfort. 

We will get better, I think it'll just be a steady game of patience. 

Best wishes 

TommyGee
Nov 10, 2024 7:03 pm

I was 21 and after 35 years I can tell you that after healing up that first year ish it all becomes Nothing much to deal with.   Healing the belly and stoma takes the longest and hurts but if you can move and stretch as much as you can tolerate really helps your flexibility in the area.  I've had amazing normal life with very few leaks or accidents.  I've had lots of beautiful girlfriends and two beautiful wives who looked past it with no problem (unfortunately just got divorced).  After trying Most of the products out there I recommend trying Convatec Flexible 2 piece.  It seems to bee the one that has kept a liquidy ileostomy the best controlled.  I also use the "little ones' pouches  (6") most of the time because I hate the huge ones unless I'm traveling or won't be near a bathroom.  In a few years everything will be predictable for you as far as eating things that bother you and find a nice cover for intimate moments and soon you'll be back on here saying the same as me!  Happy to answer any questions you have anytime!

Beachboy
Nov 10, 2024 7:18 pm

Just wanted to add... I still cannot stand straight or lie flat on my back. I became malnourished during my medical adventure, affecting my upper spine. I was bedridden for three months, hardly eating.

Two years later, my head is still tilted forward over my shoulders, causing a 2-inch loss of height. Occasionally, I get upper back pain. I am extremely unhappy about this. It makes me look frail.

infinitycastle52777
Nov 10, 2024 7:48 pm

Two months in the hospital would weaken anyone. You have to give yourself time to heal. Don't be bending down to pick things up; this could delay your healing. Stressing your stomach muscles when you are just out of two major surgeries is not advisable. Let yourself heal. Try to be patient with yourself and your healing process. I know you want to just get up and do it all, but you need some time. Do you have an ostomy nurse or PT to help you in your healing? After my stoma relocation surgery, I had PT to help me strengthen my stomach muscles, slowly and gently. If you don't have this, you may want to ask your doctor or surgeon for a referral to get some PT (Physical Therapy). If you can get a referral to a stoma nurse or wound care nurse, that would be good too. To make sure you are healing properly and nothing is getting infected or out of whack.

 

TerryLT
Nov 10, 2024 10:21 pm

Hello and welcome,  You've gotten so much good advice here that I hardly need to repeat what's been said.  I will just say, don't get overwhelmed with some of the detail and remember, everyone is different.  Especially when it comes to food, some will tell you to not eat this or that.  There is no strict rule about what you should or shouldn't eat.  The thing to do is be careful, try small amounts of foods you might be unsure of, chew, chew, chew, and keep really well hydrated.  Some with ileostomies can eat anything and others have problems with certain foods, but the only way to find out is to experiment, slowly and cautiously.  You are young and time is on your side.  You've been through a lot, but it will get better.  Just a little patience is needed.  Good luck.

Terry

Lady A🌻🌻🌻
Nov 11, 2024 12:45 am
Reply to Shamrock

So much good information. Thank you for sharing. Sometimes I don't know what or how to ask. I am new at this June 2024.

I am learning and understanding so much from this site. Listening to others who have walked the walk is so much more valuable than just reading what someone has written from their point of view who doesn't have any type of stoma or wears an ostomy bag.

Shamrock
Nov 11, 2024 1:53 am

[b]Signs of a clogged stoma.

[/b]

No output or only watery output under pressure for a few hours after eating. Could be caused by a covered stoma by improper application of an appliance, typically hole is cut too small or too much paste. Also could be caused by eating hard food. Seek treatment by an emergency room, remove appliance if necessary and wait. If clogged a severe pain will eventually appear which hopefully will clear itself. If not a trip to surgery would be necessary. Unfortunately very high and frequent output will ensue after clearing for quite some time which will likely making putting on a replacement appliance difficult. Use stool thickening tactics (below). If going to an ER, bring your own otosmy gear and a change of clothes as hospital likely doesn't carry or doesn't know how.

 

[b]What is "pancaking?"[/b]

 

Pancaking occurs when a vacuum in the bag (likely do to a clogged filter) or super thick stool blocks stool from depositing to the bottom of the bag. Thus can force bag off and cause leaks. Controlling what one eats and by mixing and consuming stool thickening and stool softening foods at the same time to get a balance.

 

 

[b]What is "ballooning?"

[/b]

Ballooning occurs when foods eaten produce too much gas and the filter gets clogged (likely due to laying down) and thus forces bag off and causes leaks.

 

These two conditions can cause premature bag replacement and leaks which burn the skin. It's better to replace the appliance if there is any continuous stinging pain, don't just live with it. Keep an eye on your otosmy supply and have ample reserves.

 

I've found that caffeine, in coffee, tea and even chocolate causes diarrhea and can assist in controlling flow so stool is more liquid..however coffee makes output very acidic making burns worse. Dried Chinese Crispy Noodles, Cheerios or applesauce (peeled apples) are the exact opposite, a stool thickening food. By mixing these with other foods one can manipulate their stool output and counter the issues above. Also the severe thickening helps in cases where one has severe diarrhea and unable to reattach a new bag due to high flow.

 

 

[b]Eating Guide

[/b]

 

Partially copied from my nutritionists guide. Ileostomy Nutrition Therapy from the Academy of Nutrition and Dietetics. (This handout may be duplicated for client education.)

 

My recommendation is to see a nutritionist for the full guide as not all can be pasted here

 

I've added my own observations to further clarify 

 

Chew all foods well to the consistency of paste.

 

[b]Foods That May Cause Blockage (very bad avoid!)

[/b]

Apples, unpeeled (unpeeled and applesauce are excellent thickeners, don't eat the core, chew well)

Bean sprouts

Cabbage, raw

Casing on sausage (inside fine if no tough parts, avoid swallowing if a chunk is felt)

Celery (avoid)

Chinese vegetables (stir fried crunchy, too hard, need soft veggies with no skins)

Coconut

Coleslaw

Corn (grits also, corn anything doesn't seem to dissolve in stomach)

Cucumbers (skins bad, inside chewed up good seems okay, no seeds)

Dried fruit, raisins

Grapes

Green peppers (red, yellow also) pureed or very very small seems okay in small amounts 

Mushrooms (doesn't dissolve in stomach) pureed or very very small seems okay in small amounts 

Nuts (totally avoid)

Peas (mushy interior okay, like pea soup, skins a problem)

Pickles (skins a problem, inside if chewed up good seems okay, seeds not)

Pineapple (liquid okay, mushy parts fine, hard parts not, tricky)

Popcorn (totally avoid)

Relishes and olives

Salad greens (diarrhea nightmare too)

Seeds and nuts (avoid)

Spinach (doesn't digest, pureed perhaps)

Tough, fibrous meats (for

example, steak on grill, well done, tough parts especially)

Vegetable and fruit skins, (any avoid)

Whole grains (no grits, oatmeal seems to be okay, Cheerios is an excellent thickener)

 

 

 

 

[b]Foods That May Cause Gas or Odor

[/b]

Alcohol

Apples

Asparagus (stink)

Bananas

Beer

Broccoli (clog hazard)

Brussels sprouts (clog hazard)

Cabbage (clog hazard)

Carbonated beverages

Cauliflower

Cheese, some types

Corn (clog hazard)

Cucumber

Dairy products

Dried beans and peas (clog hazard)

Eggs (don't digest in stomach)

Fatty foods

Fish (cooked salmon in small portions may not, nor stink)

Grapes

Green pepper (red and yellow also, clog hazzard)

Melons

Onions (clog hazard)

Peanuts (clog hazard)

Prunes

Radishes

Turnips

Soda and sipping using straws, (drink from glass instead)

Seafood (oh God does it stink!)

 

If your having pancaking issues a small amount of something above (like having a soda during a meal) could introduce some air into your diet and thus into the bag. Also by avoiding too much thickening foods by themselves which often contribute to pancaking.

 

 

[b]Foods That May Help Relieve Gas and Odor[/b]

 

Buttermilk

Cranberry juice

Parsley

Yogurt with active cultures (Greek yogurt)

 

 

[b]Foods That May Cause Diarrhea (looser or more frequent stool)

[/b]

Alcohol (including beer)

Apricots (and stone fruits)

Beans, baked or legumes

Bran

Broccoli

Brussels sprouts

Cabbage

Caffeinated drinks

(especially hot)

Chocolate

Corn (in my experience corn anything doesn't digest in stomach, just passed through and out, kernels/popcorn will clog)

Fried meats, fish, poultry (KFC, supermarket rotisserie chicken very bad, anything soaked in brine)

Fruit juice: apple, grape, orange (small amount okay)

Fruit: fresh, canned, or dried (small amount okay)

Glucose-free foods containing mannitol or

sorbitol

Gum, sugar free

High-fat foods

High-sugar foods

High salt foods (KFC, supermarket rotisserie chicken)

High seasoned foods (blackened)

Licorice

Milk and dairy foods (small amounts okay)

Nuts or seeds (bad, clog hazard)

Peaches (stone fruit, one rarely okay)

Peas

Plums (stone fruit)

Prune juice or prunes

Soup

Spicy foods

Sugar-free substitutes

Tomatoes

Turnip greens/green leafy

vegetables, raw

Wheat/whole grains

Wine

Rice (1/4 cup in mixed in food okay), refried beans (1/4 cup okay) pasta (one cup max).

Any foods soaked in brine or fried (rotisserie chicken, Kentucky fried chicken etc)

 

 

 

[b]Foods That May Cause Diarrhea (looser or more frequent stool)

[/b]

Alcohol (including beer)

Apricots (and stone fruits)

Beans, baked or legumes

Bran

Broccoli

Brussels sprouts

Cabbage

Caffeinated drinks

(especially hot)

Chocolate

Corn (clog hazard, even grits, doesn't digest)

Fried meats, fish poultry

Fruit juice: apple, grape,

orange

Fruit: fresh, canned, or

dried

Glucose-free foods

containing mannitol or

sorbitol

Gum, sugar free

High-fat foods

High-sugar foods

High salty foods

Licorice

Milk and dairy foods

Nuts or seeds

Peaches (stone fruit)

Peas 

Plums (stone fruit)

Prune juice or prunes

Soup

Spicy foods

Sugar-free substitutes

Tomatoes

Turnip greens/green leafy

vegetables, raw

Wheat/whole grains

Wine

Soylent nutritional drink 

 

 

[b]Foods That May Help Thicken Stool

[/b]

Applesauce (unpeeled apples, no cores)

Bananas

Barley (when OK to have

fiber)

Cheese (cheese food may be a clog problem, use real cheese)

Dried Chinese Crispy Noodles (severe thickening, mix with other food that causes diarrhea)

Marshmallows

Oatmeal (when OK to have

fiber)

Pasta (sauces may increase

symptoms) (in my experience more than a cup of pasta causes diarrhea)

Peanut butter, creamy only, nuts clog (makes skin oily)

Potatoes, no skin (skin clogs, more than a cup causes diarrhea)

Pretzels (salty may cause more flow water consumption)

Metamucil, mix or crackers (mix in cup of water and drink before it gells up)

 

I'm adding to this list based upon experience.

oldtimer
Nov 11, 2024 2:11 am
Reply to Shamrock

This is helpful to me, Shamrock. But I simply have to ask about Soylent nutritional drink. Is there really such a thing? I don't believe I would want to partake, as I think that most of us remember the movie "Soylent Green." Again, is there truly such a beverage? I can't believe that anyone would name a product such.

Awaiting your answer.

Kitty51
Nov 11, 2024 2:42 am

Welcome to the site. I am new here also. You have been through a lot. You are very strong to have endured blockage from a hernia and two surgeries. I recommend walking, just a little at first, then add a little more each time. It will make a difference in how you feel. Be sure to eat the foods your doctor recommends, avoiding large meals, but rather splitting them up. Protein is important to promote healing. Take care.

Shamrock
Nov 11, 2024 3:44 am
Reply to oldtimer

Yes, there is an actual Soylent engineered liquid food, and apparently, something in it causes extreme runaway diarrhea that put me in the hospital as I couldn't eat solid food for days. I chose it for the different flavors, as others are always chocolate.

Soylent Meal Replacement Shake, Banana Split Variety Pack, Contains 20g Complete Vegan Protein, Ready-to-Drink, 14 Fl Oz (Pack of 12)

https://a.co/d/gWJePG7

I thought it would make an easy meal and provide nutrition as I was weak after surgery and couldn't always go out or cook for myself.

Unfortunately, I haven't yet met with my nutritionist to provide advice on what not to eat and got clogged with nuts and had to go to the hospital again. 🙄

I try to help newbies learn the ropes as soon as possible to avoid making the mistakes I did.

 

 

Lady A🌻🌻🌻
Nov 11, 2024 4:08 am
Reply to Shamrock

Can you eat a small amount of nuts now? I miss nuts and raisins… popcorn.

warrior
Nov 11, 2024 11:57 am
Reply to Lady A🌻🌻🌻

Morning! The idea about eating from the no-no list of foods is easy.

Moderation.

Chewing.

As each person's digestive system varies, you have to experience it yourself. I mean, if you decide on nuts, for example, try just a small amount and chew the heck out of them. Just a few. And wait. You might find, as I do, little pieces, tiny specks in your output.

Did any of it affect you?

If so, stop. If not, try the same amount the next day.

I have eaten pistachio nuts, and the result was as mentioned above.

I don't know anything about raisins.

And popcorn, I avoid it, but a member here loves it and he'd say he'd pay for it later (waves to beachboy👋).

You do need to try your favorites. And just see the results. Moderation.

Chewing.

Life is too short not to enjoy certain foods.

For me, corn, nuts, cherries, garlic bread are part of MY no-no list.

While others have no issues eating them.

Just heed the advice about what a member says.

Beachboy
Nov 11, 2024 3:06 pm
Reply to Lady A🌻🌻🌻

Hello,

I have a colostomy; this month is my 2-year stomaversary. So... 2 years with my little stoma I call... Cherry Bomb.

Eating. I love nuts. Especially cashews and almonds. I discovered I can't eat them without trouble. They cause my stoma to swell up like a mushroom... for days. I still eat them, but limit the amount to 5 nuts. That's it. 5 cashews or 5 almonds. I don't eat them together. 5 cashews one week... 5 almonds the next week. Remember: Chew, chew, chew... then chew some more. Otherwise, sharp chunks will be all over the seal area of your bag at empty time.

Peanuts and pistachios are no problem. I eat them all the time, chew the hell out of them. My stoma is unaffected.

Popcorn caused me trouble at first; I ate too much at once. Same thing, swollen stoma. But I kept eating it every few weeks at the movies. Only buying a small bag, no butter. I'm careful not to swallow kernels or kernel chunks. I slowly munch half the bag, toss the rest. As always... chew, chew, and chew. My stoma is happy again, no more mushroom impressions.

I now eat beans. Refried beans cause me no gas; all other beans do. I wear a support belt that firmly holds my bag on. Last night I ate a Barbacoa burrito with black beans, rice, and mild salsa. Hours later, my bag looked like a balloon. I burped it. An hour later, burped it again. Woke up this morning, burped the balloon again. My support belt held the bag on, bag filter slightly helped with air pressure. I use an IGGIE clip on the Velcro drain. So far in 2 years, my Hollister bags have never blown out or leaked.

I eat raisin bran cereal all the time with no trouble. Eat some corn... not a lot.

So make a food diary. Eat a little, well-chewed amount of something you like. Write it down. See what happens. If you can tolerate a little, try eating more, see what happens. Eventually, you will confidently know your dietary abilities.

 

TerryLT
Nov 11, 2024 9:30 pm
Reply to Lady A🌻🌻🌻

I eat nuts all the time.  Just chew them up really well, I mean to the point that they are just mush in your mouth, and don't go crazy, just a small portion.  Wash them down with something afterwards.  I love nuts and they are good for you, so don't deprive yourself.

Terry

IGGIE
Nov 13, 2024 1:44 pm

I enjoy eating the smooth peanut butter with a spoon right out of the container. No chewing needed. Yum. Regards, IGGIE

Grammy
Nov 16, 2024 4:59 pm

I am recovering from hernia and stoma surgery. The original surgery was Sept 16, then I ran into an abscess and infection which was treated early October.
My healing mantra was "the less I do now, the more I can do later," and it has paid off. Find a show to binge-watch or pick up a novel or start playing video games. Now is the time you can do those things guilt-free because your job is to heal.
I started back with my trainer 2 weeks ago, very slowly and at a low level, and I also take yoga, and that too has been very gradual.
I test whenever I can, but I'm starting to get back into the swing. It will happen, but it takes time.

Good luck, and I hope you find a way to fill the hours. I napped a lot and watched “My Brilliant Friend” on Max.