Had my second post Ileostomy poo today

Oh brother,

The first few bits of hardened mucus came out, but not the last one despite everything I tried, straining, enemas and even sticking a stick up my bum.

I have a double barrel temporary Ileostomy, it was done until the biopsy came back if it was cancer or not, it  was. So I didn't get a barbie butt job.

So I had to seek the services of a local quick health service and for $119 the doctor stuck a finger up there and after a year and 3 months of non use, that sphincter was tight as heck and hurt like hell.

Absolutely the worst sex I've ever had. 😆 

Then she did it three times in total (sadist?) but got that little devil piece out and then told me I have a prolapsed hemorrhoid up there. 🙄

So add another surgery to my list. I'm not going to bother and if I have to pay someone $119 every 15 months to dig into my anus I think I'd rather do that than more surgery.

The cortisone suppositories she ordered cost $168, I'm not picking it up neither. What's the use? 

I was supposed to die last year but didn't and I'm thinking I really don't have cancer as I feel fine. But until next year and a second opinion I'll hold off on any surgery until I can clarify and minimize what I need.

I'm not up to going through too much or any surgery really. First time was a close call. And enough for me.

Now I just want minimal stuff, just keep me going and hopefully I'll pass in my sleep this time and not in the dam doctors office like before. I had my free ticket and I blew it. 🙄

You get a free ticket, my advice is to take it. Because after that they make you suffer and worse off make you pay for it. 😆 

Congrats on yur 1st poop.! 👍

According to former prez Clinton. She did not have sex with you. 🤣

Glad to hear you are willing to reconsider your options after a second opinion. If surgery can extract the cancer do go for it.

I was almost going to say "Dam, that was the worse sex in my life. Certainly not going to recommend your establishment to anyone!"

Then I thought better of it. 😆 

Except its three surgeries and chemo then a reverse ileostomy.

All that to live another year?

I'll pass and take my chances.

Stories of Living Life to the Fullest from Ostomy Advocates I Hollister

Ha ha. Ur Lucky she used only one finger, dude. Sexual assault.? Sue them? . Then retire.? 

Mayo Clinic Rochester MN is the only hospital in the US that has a 5/5 rating in colorectal surgery. If they think they can help you, they will accept you. You just need to send all of your records. They work with other departments as needed for your treatment. I have never seen a hospital complex as efficient as they are (and I’m an RN). If you have insurance and they accept it, it is well worth it. Let me know if this is something you want to pursue and I’ll help you navigate the process. I was very surprised they accepted me. I live in Florida so it was not an easy journey! They did not accept my son, but his situation was a not as complicated a surgery as mine. He has gone to Jacksonville Mayo and that is probably where he will go eventually.

Thanks for the suggestion, I hear good things about Mayo and MD Anderson however the three surgeries and then a reverse Ileostomy will require them to cut my chest wide open several times and believe me once was enough.

I recall them cutting the staples down my chest and the skin spreading wide open that I thought my guts were going to spill out. Then they just yanked the feeding tube to my stomach out along with the throat thing.

Then of course the constant leaking of the Ileostomy into the chest wound, the cheap and lousy Hollister products they were using looked like something out of the 40's and the horrific smell of rotten spew cups sitting in my table because the nurses didn't want to come and drain the bag because often it leaked and they would have to clean it and replace. No wonder I suffered with constant infections, likely threw the PET scan off too.

Jesus frigging Christmas not again.

I was begging them to just let me die, put me in a wheelchair on the street.

Sorry. I'm way too traumatized.

The only reason I've survived is I got a settlement and been spending money like crazy for recovery, just living out of hotels because they will come and clean up the spew mess of the bed etc. I can't afford to do that several more times. It's not like I have close family that will maybe do this type of work, I can't even find people I can pay to help me recover. 

So it's not just a matter of insurance, it's the next year of being disabled and in  recovery after each surgery.

People don't think about that.

I had my free ticket, now I sport a DNR and prey I get another fast exit.

I had a good 60 years, I don't need anymore worth going through all that trouble for only a few years more.

I don't want to die, but I don't want to be tortured neither. 

I love life and I love people, but we really need options for a quick and painless if it would be best for the patient. Not patching them up endlessly and cause them much pain and discomfort. 

Holy crap. I didn't know all this abt u man.

I dig it. U should have something like this explanation in yur profile instead of " ileostomy".  U waited this long for people to understand u and judge u here without knowing yur full story. 

U gave pieces of it for the last month or so.. I'm guilty of  misguided judgements. For that I apologize sincerely making light of some of yur topics and replies.

"Checking out" in terms of a painless death on this site will cause... issues- to say the least.

U have no one to help. Ur running out of funds. Fed up with the medical field. U leak. 

Serious shit for me to just say stop that thinking. I'd be thoughtless, careless, reckless saying that to u. But I will say..so what? U don't think each of us has horror stories we went through and yet prevailed. ? . 

But u realize others here are worse off than you never considering a self imposed-administered

death.   That gunna create some serious comments here.

And I do sympathize.  I sincerely hope u can find the answers to live or move on. 

Yea, u blew yur ticket with that settlement . That is on you. 

There has got to be a facility or agency that can help you through this.  U aren't a quitter. It's bad timing.  For all the energy u put in hating yur situation and circumstances, it is misplaced. U had a life before all this. What happened there? 

Even say talking on a suicide line. They can help u out. Tried that instead of this pity party? 

I'm saying this out of deep respect and being as sincere as possible. Don't take this reply in a bad way, man.... It will be  nothing if I know the peeps on here who will respond more firmly. 

Good thinking. I was under same impression. Remove the cancerous colon.  1 surgery. Idk if chemo or radiation is was or will be necessary after or before that.

It's a shit storm brewing for him. I think he's being ill advised on the amount of surgeries he needs.

Incompetent doctor. He needs a better one. But..alas the plot thickens..we don't  know the "other" details  abt his story. We think easy answer ..easy fix..??

His call. One more life saving surgery if that's it will change his entire life. 

I intend to get a second opinion after the new year.

I didn't die in a year like I was told and certainly not having any further complications.

There u go. Glad knowing this. 👍.