Using Tincture of Opium for Iliostomy Output - Experiences?

My doc prescribed tincture of opium to try & slow down my iliostomy output.  I had a heck of a time trying to find a pharmacy that would even fill the script. I finally found one & they have to order it.  Should be in tomorrow.

Has anyone used this?  Does it work? Can I get addicted to it?

Hi Janice,I'm interested in this medication you have been prescribed...Is it meant to help slow your bowel down?If so, then I'm REALLY interested...I have been using Codiene now for over 20yrs..I am so addicted to it,that I cant go any longer than a few days without them..I get so sick.I am on 6 to 8 a day... If there was any chance there was something out there that could do the same or better job....maybe minus the addiction, but then that could be pushing my luck..I would give it a go...Mind you, being here in Australia, might be ten yrs before we are allowed it...lol..Anyway, I will be keeping a close eye on your post  for some answers...thank you so much....Take care..    Tara

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Tara, yes doc says it should slow down my bowels.  I'm kind of apprehensive about how addictive it may be but, hey....if it works it will be worth it to spend less time on the toilet! I'll let you know how it works.

I've been on opiates (pill form) and they do nothing to slow it down.  Hopefully this will work.

Hi Janice,



Oddly enough, after my surgery in July, the nurse at John's Hopkins recommended over-the-counter Imodium (the not-so-tasty green liquid) to control/slow down  iliostomy output.  It worked very well for me.



Have you tried that?  Sometimes the simplist and most effective solutions don't require prescriptions

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In any case, good luck to you!!!!!!!!!



Be well and enjoy the day/moment,

Sharon

Yes Sharon, I was on Immodium, Lomotil, & cholestromine powder (all anti direah meds) at the same time.  Didn't do a bit of good.  We'll see if this does any better.  I guess cause I have less then 2ft. of sm. bowel left it's just going to be active.

How to Manage Ostomy Leaks with LeeAnne Hayden | Hollister

Hi Janice, I am glad there is something else out there that might help me...As with the immodium...lmao...i was on 24 a day and it didnt do a thing.Tried everything over the counter and everything under it....Yes the codiene does slow down how many times I have to empty.The food does not stay in my system long enough to get the goodness out of the food,so I was wasting away,plus the money being spent on food was sending me broke..could never fill me up,was like after a huge meal,I was so hungry still..That is why I push the codiene as I know it works..You sound a lot like me with the no small bowel to speak of....lol...ok thanks again Janice...good luck with it.

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thanks tara!  LOL...I'm the same way, I am ALWAYS hungry!  I thank God for the tpn!

still haven't got this scipt yet.  Was spose to be in tues, then today, now they said it's out of stock, other pharm wouldn't even try to fill it....I can't stand new jersey!

Well, it finally came in.  The stuff tasts NASTY!!!  Took 3 drops on my tongue b4 dinner. Haven't noticed a difference yet but, will give it a few tries.

Hi Janice....nice to hear you got hold of it finally.....And yes,wasnt expecting it to taste like Lockanora...(mothers milk-a scotch liquer..mmmm!!!)Anyway,back to the topic at hand...I asked my doctor about it and guess what happened? He tried to look it up on the computer and ,so he said, he couldnt find anything on it...and by the dumb look on his face..I'm pretty sure he has never heard of it before...So, looks like I'm sticking to the codiene...Ah well..it works, so what more can I ask hey..Hope it is working for you...I know the relief I got after my medication was fixed..and how fast I got better...So I pray this works for you....Good luck ,Tara  

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Hi Tara,

   It DOES seem to be working, however, because it slows it down so much, alot of times the contents of my bag seems to hang around the top of my bag cause it's so thick. (I think someone on here called it "pancaking".

  I've had several un-expected blow outs and I think this may be one of the reasons.

I was taking it four times a day.  I've cut it back so hopefully I won't spring leaks as much!

Hi Janice,thanks for getting back to me...Yes, as I was reading I thought right away,slow the dose down...surprised they started you on a high dose right away..I had to start slow and go up...anyway, great to hear it works...And as you say your getting a bit of pancaking...Think I'd rather have a pancake than a waterfall.....

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Thanks again for your help.Tara

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Hello again Sharon: Like you ladies I also have an iliostomy and it seems as if for every quart of liquid I drink I seem to lose one and a half. For the last five years I've been taking Imodium when things get really bad. Today I seen my doctor and he suggested I take one pill a day for the next two weeks and maybe then go to two daily. We'll see. Now to my question finally, Sharon, you mentioned taking the liquid Imodium and have you tried the pill form for a comparison. Really would like to know as that's the biggest cause of my potassium problems. If only I were a camel, one drink in seven days, that would get me over the hump. Thanks, Ed

I too have been taking Lomotil (prescription) and immodium pills daily and still have very loose stools. My dr prescribed Tincture of Opium but my insurance wouldn't cover it and wanted me to pay $550 for it.  Then my dr instead prescribed Paragoric Liquid which is a less potent version of Tincture. It tastes so nasty, and when I do take it, I really don't notice too much difference. Especially at night - I have to empty bag about every 2 hours.  During the day, it's much better. Also at night I tend to get a lot of air too.



Strange how it's different for everyone.