Living with an Ileostomy Due to Severe Colonic Inertia

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2
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4814
tknight1
Sep 22, 2013 3:43 am
I will live with my ileostomy the rest of my life. I had a operation in June 2012 to try to get my colon to work. However, I had to have an emergency ileostomy. A year later my doctor tried the reversal with the J pouch but unfortunately it did not work. He had to go back and put in another ileostomy. He said I have thwart worst case of colonic inertia he has ever seen in his practice. I was wondering if any one else has an ileostomy due to this problem. I have good days and bad days. Also, some of my relatives make me feel that I will never date again due to my ileostomy.
iMacG5
Sep 24, 2013 3:50 pm

Hi tk. Sorry you didn't get any responses yet, but there are lots of folks just like you and they're probably interested in discussing with you. How about posting a similar message in the "Intimacy and Dating" section? I know nothing about ileostomies and less about dating. I've been with the same woman for about 55 years. We're still in love, and you'll probably find a similar relationship down the road.
Wish you well,
Mike

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Juuust_James
Sep 25, 2013 1:14 am
I used to chat with a Lady in Australia with an Ostomy that had a very rare condition where she was born without one of the vital nerves that runs through you entire bowel that aids in the expansion and contraction of the intestine to help push food thru and digest. the poor dear had a very limited menu of foods that would not give her blockages.

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As for your relatives -dont listen to them and let them pull your down as far as dating! -it took me quite a few yrs to get up the courage to date again after my surgery 17 + yrs ago, but since then I've been 3 relationships, and none of the ladies had any problem with my ostomy what so ever. I ended all 3 relationships. I found that once i could see that they didnt have a problem with my bag -then i no longer had any feeling of inadequacies about it.

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i've spoke to many people over the past 10 yrs in serious relationships and even marriages, and they all say the same thing "my husband (or wife) doesn't have a problem with my bag - I DO" -so once you get past that feeling of being different or less of a person then you life can and will be just as it was before you operation.

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