Hi, my son has an ileostomy and has a shower with his bag on if it is stuck, and also enjoys having a shower with it off!!
With an ileostomy, make sure you have a shower before you eat, or you could have one heck of a mess because it travels very fast out of the small intestine because you are relaxed and it's warm. Lots of experiences with this one!!
At first, he was worried it would hurt, but of course, stomas have no feeling, so they say. But I think the feeling of it was odd, but no worries now!!
Here's a wee story to tell you: my son is 10. He has had his ileostomy for 5 years after 6 months with a colostomy. There are no nerves in the large intestine since he was a baby. They picked this up finally after 5 years after doctors saying wrong formula, not eating vegetables or fruit. He did all of these, but not once did he ever go to the toilet for poos!!
Then they sent us to a psychologist to change his thinking at 3 years. Still not been to the toilet, except a bit in undies or with anemia every 3 days!! The doctor thought he had been lazy, so left him for 28 days with no bowel motion!! He must have a very high pain threshold. They did an X-ray and there was no room around the whole large intestine. It was concrete compacted poo. I was mad, upset. "How could they leave him this long?" They said it's a process that we have to do to eliminate what it could be, so they did a clean prep, and we had this for a whole year, every 4 weeks!!! It was a nightmare! He was convulsing on the loo when it was coming. Well, it had never really opened to go to the toilet... So I am more than glad that we have an ileostomy. This is easy work and pain-free for him!!
We went camping at Christmas time, and the kids were in the wee rapids floating down on their backs with life jackets on. Then Griffin out of the blue says, "Can I take my bag off?" Sure, why not? Who wants to wear a wetsuit in 35°C!!!
He said, "This feels weird. What if I hurt it?" He said. I said, "Have you hurt your finger in the rapid?" "No." "Well, you won't hurt the stoma, okay!!"
He goes down the rapid with no bag, and at the end, stands up out of the water, puts his arm in the air, and a brighter red cherry on his tummy and shouts, "I'm a real boy!!" "You sure are a real boy," I said, "a super boy!!"
Then the tears of joy started!! So sorry if I got a bit off track. Yes, you can shower with your bag off, but don't use soap around the bag area because when you put the bag on, it may not stick because soap has oils that don't agree with the bag. Just wash the body normally but not the bag area, just water!!! We were told not to use wet wipes because they also contain oil, so we use cotton-like sheet cloth... Griffin says toweling hurts because of the bits on that cloth!!!
Wow, didn't realize all this would come out of one question!!!
Cheers, Julie
Griffin's Mum