Post-Rectum Removal: Dealing with Discharge and Pressure

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4421
amitg
Dec 03, 2015 10:24 pm

Hello,

I had my rectum removedin 2012 and have a permanent colostomy on the left side.  I am still getting a lot of discharge..sometimes mucos, sometimes blood mixed in.  I feel like I am passing stool...I get that sensation.  For the last 2 days, I have been getting a lot of pressure from down below and the color of discharge is brown...I am totally freaking out right now...left my surgeon messages....someone please help!!!

 

Is this normal???

Bill
Dec 05, 2015 9:14 am
Very helpful

Hello amitg. When you say you've had your recum removed do you mean you've now got what is amusingly called a 'Barbie-bum'? If so I wouldn't think you should be having this sort of discharge and maybe you ought to be seeing someone about it.  However, if you still have what they call a rectal stump (basically a small bit of rectal tube still attachedto the anus where they have severed the colon) then it is quite normal to have a mucus discharge long after the operation. I'm still getting it years later! The blood is a different matter altogether and should be brought to the attention of someone who can investigate it further. I hope your surgeon contacts you sooner rather than later as these sorts of things are very worrying until someone comes up with a plausible explanation  and then sometimes the retrospective view makes you feel embarrassed at having worried so much in the first place. But first you need to get to the point of hindsight before the relief kicks into play.  Best wishes Bill 

Posted by: Karen & Stella
Fay,

I am one of those few people who still have a lot of output at night. However, I suffer from short gut syndrome after seven bowel surgeries that led to the loss of much of my small intestine as well as my large intestine from the initial bowel cancer surgery. It does get better over time as your system adjusts, but an ileostomy can be a challenging adjustment. It's important to connect with a good Enterostomal Nurse - ET nurses who can help you problem-solve over time. It's been five years since my initial surgery, and I had a great visit with a new ET nurse in December. He really helped me with the problem of high output at night. I had been getting up every 90-120 minutes to empty my high output bag because of filling. If I slept for three hours without emptying, I would have problems. My ET nurse helped my husband and me make a nighttime collection system using a Rubbermaid juice container with a handle and my old CPAP hose. This is connected to one of my two-piece high output bags and allows for continual drainage. It isn't pretty, but it has been a real lifesaver. I guess the real message I want to share is to stick with it, find a nurse who you can work with, and together you will find solutions to whatever challenges you face. This website is also an important support for me and others. There is nothing you will go through that others haven't already faced and figured out. There is so much wisdom here. Read the materials they've put together for newbies. There are a lot of great suggestions to use. I hope things get better quickly for you.
Karen
Newbie Dana
Dec 08, 2015 6:24 pm
Very helpful

If your surgeon or someone in his office has not returned your call by now, you need to call and schedule an appointment immediately - don't wait for further call-back. If your insurance requires a referral first (and some do) then immediately schedule an appointment with your GP, and request a referral to your surgeon. Your GP's office will then arrange the appointment with your surgeon.

Like Bill said, the mucous discharge is normal, even the feeling of passing a little stool (sometimes mucous will harden and turn brownish - I looked that up). The blood is a different matter and should be checked immediately, even if it turns out to be nothing important in the logn run. Your peace of mind demands it.

cabbage
Dec 10, 2015 3:07 pm

Hi amitg:  If I didn't know better I'd say I wrote your comments myself, right up to the occasional drops of red blood and having the surgery in 2012.  If you do see a doctor and he shows concern or has a remedy, please reply.  I'd be very interested in hearing from you.    In the meantime, ....isnt that discharge a pain in the neck?  My daughter had fits because I choose not to have the situation reversed.  My thinking was, and still is,  I occasionally, unespectidly get diahera and what's easier, having it in a bagthat I can throw away and gon on about my business,  or maybe being out in public and having it in your clothes.  I have friends and neighbors that have had this thing for 20 years or more and they live happy normal lives, some have had it since they were children and are now married with children of their own.  Keep the faith, and God Bless!  there are things a whole lot worse.

 

 Cabbage