Ileostomy complications - Weird sensations and prolonged bloating after reversal

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Atom009
Mar 02, 2016 4:04 pm

Hi there! First of all, thank you for taking your time out and reading my post. I had an emergency operation of tubercular intestinal obstruction and 3 feet of my small intestine was resected and ileostomy was created. One night, I felt something weird (like a shock) near my stoma, something like my intestine is pulling inside and whenever this happens, gas came out. I discussed with many doctors and all responded as normal, and I was convinced that my intestine was stitched in my abdomen, so when my intestine moves, I felt it in my abdomen. But after having reversal, I still felt the weird sensation in my abdomen. I am still looking for an answer if anyone ever had this weird/shock/sensation. Please do let me know. Also, one more thing, how long does this bloating last? I had my reversal on Jan 28, 2016, and I am still bloating a lot and it seems like I am 3-5 months pregnant.

Bill
Mar 03, 2016 6:22 am

Hello Atom009.

Thanks for posting. I haven't had this problem but I'm sure that someone else posted something similar a while back. Hopefully they will see this and reply giving you some advice on the subject.

There is the option of trawling back through posts to see if you could find it. Sometimes these things are listed in 'forum topics' but I cannot remember whether I saw it in a forum or a blog.

Best wishes Bill

Posted by: Primeboy

Hi Mike and all. I am not sure how panoramic my perspective really is as my peripheral vision shrinks with each passing year. I can tell you that when I came to this website six years ago I was truly ;impressed by the positive attitudes of so many members, especially the younger folks who refused to let their ostomies define who they were or what they would become. I also came to appreciate that having an ostomy is not the same thing as having a disease. Pardon ;my pun now, but ostomies and cancer don't belong in the same bag. One is a solution, the other is a problem. Celebrating National Ostomy Day ;is also well outside my comfort zone. That's like celebrating National Wheel Chair Day. Come on!

I think there is a ;need for improved ;public awareness of ostomies, but I am not sure how that's best done. There ;remains ;some social stigma attached to our situation, and it's acutely felt among our young. We need to get out of the dark ages on this issue, but not by going 'in your face' to everyone else. I think Bill and NDY are 'spot-on' when it comes to telegraphing the right message to friends and family. People will know how to react when they ;see ;how we accept the cards we were dealt. I also appreciate the contribution some people here are making to this effort through their publications.

On a personal note, my son has been suffering from ulcerative colitis for years just like I did. I am very concerned because people with UC are at a higher risk for colon cancer. Years ago my GI told me to get annual colonoscopies to be on the safe side. I am glad I did because he eventually found pre-cancerous cells which led to several surgeries and my becoming an ostomate. Since then I have always ;conveyed a positive attitude to ;my son about wearing a bag because it has kept me alive to enjoy many more years with my loved ones. I think he got the message. We both go to the same gastroenterologist in NYC and get scoped on the same day. Father and Son moments!

Someone once wrote that our children are the letters we write to the future.

PB

Atom009
Mar 03, 2016 8:41 am

Thank you, Bill.

Atom009
Mar 03, 2016 8:43 am

Thank you, Bill.

Ewesful
Mar 06, 2016 1:16 am

I have a permanent ileostomy but the shock feeling and pulling are where the intestine is now caught on your other organ or skin -- sometimes they can get really bad - other times actually pull free but they are adhesions --- if they are really bad they will need surgical intervention. There is a wrap now that prevents them but it is not known to a lot of the doctors and you have to request it whether they know of it or not.

As for the bloating -- you have to work the gas free -- it has to move on through the colon. Are you able to do any exercises yet? Walking helps. My father had quite a number of issues with both of the conditions you have ....with the bag I don't because you just burp the bag! Good luck -

I do know that sodas and fizzy foods are bad news for you, also chewing gum etc....anything that brings air into the system...

 

Staying Hydrated with an Ostomy with LeeAnne Hayden | Hollister

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LadyHope
Mar 08, 2016 2:17 am

Hi Aton, thank you for your post. I may consult my doctor once again and ask for an X-ray or an MRI to evaluate the situation. Maybe there is something to the bloating you are experiencing. I would research possible solutions and request a second opinion or speak with another doctor. Feeling 5 months pregnant would be a concern to me. Good luck! Keep us posted on your progress. LH

StukNthisNOTbyChoice
Mar 08, 2016 2:19 am

I almost don't want to answer your question for fear that my answer will alter your hope, but in my own personal experience, the bloating and gas never went away and actually continued to progress worse.

StukNthisNOTbyChoice
Mar 08, 2016 2:19 am

I almost don't want to answer your question for fear that my answer will alter your hope, but in my own personal experience, the bloating and gas never went away and actually continued to progress worse.

Atom009
Apr 18, 2016 2:32 pm

Thank you for your time.