Occasional Knotted Feeling in Bowels with Ileostomy

I have had my ileostomy for 5 years. During the last year I have occassionally experienced what feels like my bowels being knotted up when I happen to stretch out ...  mainly when lying in the bathtub & raise myself to a sitting position. Wondering if anyone else has experienced this.

Hi flowerlady,

I'm sure you'll find plenty of support from our large community here. It's a great place to share experiences and get advice from people who truly understand what you're going through.

Regarding the knotted feeling, I've heard others mention similar sensations, especially when changing positions. It might be related to how the intestines settle or shift when you move. Sometimes, gentle stretching or adjusting your position can help ease the discomfort. However, it's always a good idea to check in with your healthcare provider to rule out any underlying issues.

It's great to have you as part of this community. You'll find lots of support, information, and some really cool people who are always ready to help out. Looking forward to seeing you around the forums!

I've had my colostomy for a year and I feel the same thing.  In fact, I can literally feel it under my skin.  I believe it to be scar tissue.  I know I grow a lot of it.  :)  I'm not saying that is what yours is, but just a suggestion.  

If it's painful for you, I suggest letting your doctor know about what you're feeling. 

Thanks, Ozzwood. I will check with my doctor or ostomy nurse.

I also agree about adhesions - scar tissue - and it can become a problem.

Before the fabric covering that is now used by some surgeons the adhesions could be almost as bad as the problem.  Every surgery has the potential of adhesions.  I was so lucky to get the fabric and I only had one problem area and it "let go" or whatever as it is okay now.  I don't know if there is a solution but I do know it can be pretty serious in some cases. I would definitely request specific info from the Dr.

Good luck

Thank you Ewesful for the info. Will be contacting my surgeon .

Words of Encouragement from Ostomy Advocates I Hollister