Choosing Between Three Treatments for Colonic Inertia and Pelvic Floor Issues

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dawolfe
Apr 22, 2018 5:49 pm

On Friday, came from colorectal surgeon.  Dx is colonic inertia and pelvic floor issues.  He gave me 3 options.  1.  Just keep doing what you're doing which is taking lots and lots of laxatives every 2-3 days.  (I work a full-time job but do miss work because of this illness).  2.  Total colectomy with ileorectal anastomosis.  3.  Total colectomy with ileostomy.   Just asking for opinions please.  TIA......

maddie50322
Apr 22, 2018 9:21 pm

So I got an ileostomy because I was diagnosed with severe colonic inertia and severe pelvic florr dysfunction as well as overall digestive tract paralysis essentially all due to my connective disorder. For me the ileostomy was the only option though. My surgeon told me the second option you are talking about wouldn't work because if you have pelvic floor issues you can't push things out. Option One was also not an option for me because I was on an excessive amount of laxatives daily, I had tried every laxative no joke on the market, and in various combinations yet despite all of this I was going once a month. For me within ten days of doing the last test/having the follow up appointment I was in the OR getting the ileostomy. Because of my conective tissue disorder and how bad my colon function wsa (it had literally no function), my surgeon was seriously afraid my colon would rupture and I would go septic.  He also wouldn't let me put off the surgery until my winter break (which was about a month and a half after the original surgery date), because he felt my colon was in such bad shape. I didn't get my colon take out at the time, I just got the loop ileostomy so I could reverse it if I didn't like it and it is an easier surgery to recover from. But he said if I was planning on keeping it within a year or so I need to get my colon removed.

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dawolfe
Apr 25, 2018 2:40 pm

Thank you so much for your response.  Very much appreciated...

 

 

vdahl
Apr 28, 2018 1:52 am
I agree... I have an ileostomy for the same reason 2.2.17 I do have a loop ileostomy with the large intestine bypassed as well. My surgeon said there's absolutely no point in trying to reverse it because of the pelvic floor issues. She said she'd rather not remove the large intestine but I'll admit, I'm having real issues with inflammation not to mention the loop stoma. Do either of your doctors talk about pros/cons for leaving the large intestine?

Thanks, V

Are either of you aware of t
maddie50322
Apr 28, 2018 2:04 am

I was told by my surgeon long term, my colon will hve to come out within a year or so of the ileostomy being put in and then my stoma would need to be converted an end ileostomy. I was told it is because since the colon isn't being used it will detiorate.  Also just long term end ileostomies are better. I am looking to have mine removed around the end of this year or beginning of next year. I also want to seperate my feeding tube as well at the same time. So I need someone who can do both

 

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