Anyone out there with the strange combinatio of ileostomy and Multiple Sclerosis. Am I unique? Belinda, England
Belinda
Dec 27, 2007 4:15 pm
Butterfly
Jul 13, 2009 4:08 pm
Hello Belinda...I notice you posted on here ages ago and had no replies.
I'm in England too...
After lots of health problems I was told I was probably miss diagnosed with F.M. and C.F.S. and possibly have M.S.
After saying that... my health has improved dramatically these last few months after another diagnosis of Acidosis which meant the acid in my blood and tissues was making my immune system work against instead of for me. A long standing problem.
I have had a stoma since 2005 and got married four months later.
I don't know how much your M.S. effects your daily life and having a stoma. You have a lot to cope with.
I wish you well and if you want a chat I'm here!
Regards Butterfly.
I'm in England too...
After lots of health problems I was told I was probably miss diagnosed with F.M. and C.F.S. and possibly have M.S.
After saying that... my health has improved dramatically these last few months after another diagnosis of Acidosis which meant the acid in my blood and tissues was making my immune system work against instead of for me. A long standing problem.
I have had a stoma since 2005 and got married four months later.
I don't know how much your M.S. effects your daily life and having a stoma. You have a lot to cope with.
I wish you well and if you want a chat I'm here!
Regards Butterfly.
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Belinda
Jul 13, 2009 4:23 pm
Hi Butterfly, How very nice to hear from you. Sounds as if you've had plenty of problems too. I started with MS when I was 15, but didn't get it diagnosed until I was 40, during which time I was written off as a hypochondriac -nobody could have so many different symptoms etc. Went through relapsing/remitting stage and am now at secondary progressive. Should by rights be in a wheelchair by now, but I'm not, though can't walk further than round the house and garden. Got UC when I was 55. It got worse, then much worse, and ended up with an Ileostomy and Winnie the Poo was born. Had to have Barbie Butt done 3 months later. Oh what fun!!! Love my garden though and all things to do with wildlife and photography etc. Live with my brother in a bungalow in Scarborough. Right -that's more than enough about me. How about you? Thanks so much for posting. Belinda.
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Butterfly
Jul 16, 2009 10:50 am
Hi again Belinda....having computer problems. am trying to send you longer message.
I haven't forgotten!
Regards Butterfly
I haven't forgotten!
Regards Butterfly
Past Member
Feb 23, 2022 3:01 pm
Reply to Belinda
Hi Belinda,
Our MS diagnosis stories sound very much alike. I've had MS since my teens, diagnosed at 40, when I transitioned to secondary progressive. I also have RA, OMR and GCA, the auto immune alphabet.
I have a Colostomy. All that we each have is a lot to deal with!
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