Ostomy Topics

Carry Post-it sticky notes with you in case you have to use a public toilet that is automatic. That way, you can cover the sensor up with the sticky note, and the toilet isn't flushing the whole time you are emptying your ostomy.

I'm new to the group & haven't had time to search the site thoroughly yet. Saw the ostomy nurse yesterday & she mentioned StomaDome & measured me for a Nu-Hope flat panel belt with the prolapse support flap. Any recommendations/opinions on these products?

Hi - I think I am missing something... Sorry y'all, I am not quite 2 months out from surgery, so I have lots of new things happening. Most recently, a hernia (looks like I have half an orange under my stoma). I've done a lot of looking around here and googling, and the general advice seems to be a convex bag. I don't get it. My hernia obviously pokes out; the convex also is outward, so you hav ...

Hello all!
As my title topic says, I have very small, hard, sand-like in size, black round grains or something in my output pouch. I cannot crush them as they are too hard and they could possibly make a hole in my bag if I try to crush them harder. Any ideas as to what this may be? I cannot relate these to any kinds of foods I have eaten. Anyone else experience this?

This may sound strange, but every once in awhile I have the urge to pass gas or poop the normal way. Sometimes I feel like I need to get to the bathroom quick.
Does anyone else have these urges? I've had my ostomy less than a month.
Just curious as I find this kind of humorous.

I will be reversing my ileostomy soon and I am really nervous. I am excited because I won't be attached to a bag anymore and I am looking forward to summer. I believe this will be a summer of growth. But I am nervous. I started with a colostomy and now I have an ileostomy (which will be reversed) and I have been attached to a bag for almost two years, so I'm nervous about how it will go.
I'm s ...

After three years with an ileostomy and no major problems, I have started bleeding for about three days. The first day, the blood was very red and heavy, but only when I went to empty my bag. The second day, it was light, and on the third day, it was dark reddish-brown. I don't know where it's coming from. I only have a primary doctor who knows nothing about ostomies. My stoma surgery was an e ...

I had my loop ileostomy since May 13th, 2021. I was supposed to have a reversal in November 2021, but for some reason, it became hard for me to ambulate well, so the doctors said I have to be able to walk to go to the bathroom before I can get a reversal. I'm 400+ lbs. It has gotten harder to move around; it feels like something is wrong on that right side. Stuck in the house with no one to ta ...

Good day to you all. Wondering if anyone has any tips on dating after your ostomy surgery, when should you open up about your new you on the first or second date.

Had my ileostomy surgery a year and a half ago, and since then I've seen numerous reports on this site about blockages. I eat anything I want, probably don't chew as well as I should, but I've never had any problems with blockages. The thing I'm curious about is whether the skill of the surgeon who's performing the ileostomy would have any bearing on whether or not you're going to have blockag ...

Byram (my supplier) said they stopped carrying adhesive remover spray because insurance won't reimburse enough for it. What are we going to do?!?!

My ostomy bag is filled at least halfway each time I have to pee, and I pee a lot because I drink a lot of water. I am up every 1-2 hours all night peeing and emptying the bag, then feeling dizzy when I lay down. I thought maybe it was dehydration, so I increased water and added some hydrating salts. It made it worse. I had some bad cramping in my lower abdomen, so I finally took some Imodium, ...

According to their sizing directions, I am 40”, which is XL. I have never been an XL around my waist. Do these wraps run big or small?

DIY STOMA GUARDS. (pictures)
DIY STOMA GUARDS.

I did not think it would be hard
for me to make a stoma guard
that could be a perfect fit
and would let shit flow out of it.

The stoma guards I fabricate
would have to fit on my baseplates
and also they’d accommodate
attachments that would act as mates.

Attachments that I had in mind
were bags and sleeves of different k ...

Hi Folks,
Those of you who are familiar with my posts will have seen me talk (practically brag) about how I can eat anything, no problem, as long as I chew well, keep hydrated, etc. Well, I just got a rude awakening. I just spent the last 30 or so hours in the hospital, first the ER, then admitted overnight. I went to bed Thursday night feeling a little gassy, not unusual for me, and expected ...