Nighttime leaks - Seeking advice for consistent morning leaks

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1106
douglasrbrown2
May 04, 2022 7:03 am

I am just about 4 weeks into my ileostomy from stage 3 rectal cancer. The surgery was a success and my cancer is gone. I have about 9 more weeks till reversal surgery, so I am a short timer with my ostomy (I continue to pray this is the fact). My problem is I have leaks every day for the last 2 weeks. I have posted once in the past about this and received excellent feedback.

I had 3 major blowouts this past Sunday, other than that my leaks occur at about 3:00 AM every morning. I am still working and travel the state for my job with no issues getting in and out of the car, looking at job sites, etc. I get up every couple of hours at night to empty my bag. My question is why would my leak occur about the same time every morning? I sleep on my back with very little movement. Getting very frustrated and my home nurse has not been much help.

Looking for advice.

Thank you

HenryM
May 04, 2022 8:21 am

Are you flat on your back?  I sleep on my back too, but I pack a bunch of pillows behind me so that I'm actually just reclining rather than flat on my back.  That way any discharge can flow downhill, as it were.  Even when I go to the dentist for a cleaning, I won't let them put me all the way back.  She always says, "oh, you have back problems?"  I answer, "I just need to stay somewhat upright." 

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Past Member
May 04, 2022 10:20 am

Hi Douglas, that is strange. It is at the same time. I have no idea. I got all kinds of weird results when I googled "waking up at 3 am". LOL Just wanted to say welcome.

Cplumber
May 04, 2022 11:36 am

Henry might have something! Laying flat on your back gives the juices time to pool and cause a blowout, also wearing a belt might help.

Good luck. I will be praying for you.

ron in mich
May 04, 2022 1:05 pm

Hi Douglas, I have an ileostomy and can't sleep on my back as others said it pools around the stoma and eventually gets under. I sleep on the opposite side of my stoma with an occasional roll over to the other side for a sip of water and doze off again.

 

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countyclare
May 04, 2022 1:59 pm
Reply to HenryM

Very helpful comments, Henry.

I have always appreciated your ability to help advise new and newer ostomates on this site.

Keep up the good work and stay well.

Mike from Cleveland, Ohio

TerryLT
May 04, 2022 7:44 pm

I also agree with Henry's advice. Letting your output pool around the stoma for very long will allow it to start seeping under the flange, particularly if it's quite watery. The fact that you have an ileo will also contribute, as opposed to a colostomy, as your output is more caustic. I hope you are able to sleep on one side or the other. That should really improve things. Good luck!

Terry

Panko
May 05, 2022 9:03 pm

Use Coloplast Brava Tape Extenders x 2. Sorbaderm Barrier Spray. Maybe a change of brand of bag? Try Dansac Easi Fold Nova 815-15 Extra Big for heavy output?

warrior
Dec 12, 2023 5:44 am

Try sleeping standing up hahaha just kidding. I feel your pain at 2:00 or 3:00 a.m. in the morning, having to empty the bag because that seems to be the time that my stoma just kicks into overdrive. But I do believe wearing a belt and, as the others have said, trying to sleep on the opposite side of your stoma would really, really improve things for you. The worst part is losing sleep and then the next day trying to do anything at all. I'm amazed that you can still go to work and continue working, but man, I'm telling you, a good night's sleep is something I wish for. Since 2016, I have not had a decent night's sleep, so I wish you well. Try what the people have mentioned above and let us know how you're making out, okay?