Hydration Tips for Ileostomy Patients with a Love for Outdoors

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carly
Aug 21, 2010 11:57 am


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hi- the trick for me to stay hydrated is to eat lots of chips and pretzels..then i drink some gatorade- and the water seems to hold- i have an ileostomy and without all the extra sodium and potasium i just can't keep any water in..also- so glad that fall is coming - the heat has been too tough for me- can't enjoy the beach or anything outdoors without getting weak and dizzy...i love to walk outdoors- so- i am so glad that cooler weather is on its way...have a good labor day to all...carly
PJT
Aug 23, 2010 8:13 pm
I agree 100% Carly. This summer was terrible. I don't like sweating unless I have a good reason. I couldn't do anything outside since the middle of June. No barbecues, gardening, or biking. This summer ruined my summer! The good news is that Fall is around the corner. I can't wait.



PJT
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wookie2005
Aug 24, 2010 5:16 am
Hi there,

I have only had my Iliestomy since end of June, so for me thats dead middle of Winter. Im not lookinf forward to summer at all this year!!!! as our winter has been one of the coldest i think summer will deff be warm:( Im already sweating around the Stoma and i have irritated skin, it itches like all hell, but i shower without the bag on every 2 days just to give it a wash and i use Calmoseptine ointment, my bags dont stick once i put that on tho:( so its a matter of me taping my bag to my body!!!!! doing that also reduces the leaks that may happen....



I hope you can relax a bit more now that your fall is coming! As your cooling down we getting warmer!



Speak soon

Brooke
Past Member
Aug 24, 2010 4:13 pm


Thanks for that advice Carly, I will taking that on board next time I fly back home as I have severe jet lag at the moment and am sure it is mainly due to dehydration.
Am looking forward to the fall in the states too!

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Cheers,
Jo x  

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friendly
Aug 24, 2010 11:18 pm
hi there.  i am not sure that i would use caloseptine on the skin before applying the wafer.  this would probably cause the wafer to not stick to the skin, causing leakage and skin irritation.  the wafer usually heals any raw skin when applied properly.  good luck.
 

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bikerboy
Aug 26, 2010 9:17 am
I like pretzels to they help me retain water as well.I drink alot of gingerale soda and it stays inside me even when its over 100 in the sun.I dont get back cramps or feel dizzy when Im working inside a ship or welding.But if I eat the honey mustard pretzels they produce a lot of gas.Have a great day

bikerboy greg
Mike
Aug 26, 2010 8:03 pm
I try to drink a lot of Iced tea, It was 110 here yesterday,Yikes!! stay cool & hyderated!! Mike
ShineyShawnee
Aug 26, 2010 8:31 pm
Pedialyte works great for me.  They sell it in a box as individual powder packets you can just add to a 16.9 oz bottle of water and shake it up.

The Florida heat has been brutal this year so I've been taking in at least 1-2 a day in addition to water.
dnl74
Feb 04, 2013 11:21 pm
Wookie,  this is what I do for my husband, when his starts to itch (and it does often) he will remove the whole device and shower and clean around it really good.  Then he will lay down on the bed and let the air dry around the stoma.  I will apply some benedryl cream all around except up against the stoma.  Of course we have to keep a box of tissues close by for leakage

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but he will lay like that for 15-20 mins until the cream has aborsbed into his skin.  Then we put on a fresh clean wafer and patch.  Still using the cleaner and stoma guard.  That seems to help him he says.  The burning we can't get agrip on though.  Maybe trying this once to see if it works for you.  He says its just nice to lay there without the contraption on him.  He is not a candidate for reversal since he does not have but about 10 inches of colon left.   Good luck.
ZaliBee
Oct 07, 2013 9:16 pm



My nurse told me to use anti-fungal cream since we can get fungal infections under the wafer and it will cause the itch, especially after washing.
garfish
Oct 18, 2013 10:35 pm
did you ever try 3M barrier spray?
gutenberg
Oct 18, 2013 11:10 pm

Hi Garfish, I finally found a friend who supplied me with some homegrown medicine. The only problem is I've been too sick to try it out. Things are not looking too good right now, and there might be more surgery, so I have to be careful.
Ed

Primeboy
Oct 19, 2013 2:13 am
Good luck, Ed. Please keep us posted.

   PB
garfish
Oct 19, 2013 9:02 pm
glad to hear it. one toke over the line.
gutenberg
Oct 19, 2013 11:26 pm
Speaking of one toke over the line: one day I took a little trip down to the river that runs into the harbor and I'm sitting in the passenger seat with my fishing rod and listening to Credence and the volume was pretty high just like me, when all of a sudden I hear this voice saying "now this is my idea of fishing so I flipped the butt and got out and started talking to this RCMP officer and we were leaning against the car and on the front seat was an open cigarette package and it was pretty obvious what it contained but he never mentioned it and we had a great chat. A few weeks later I was at the mall and here is the same Mountie setting up a table to sell tickets  and the first thing he said to me was "hey Ed are you going to buy a couple of tickets from me" and you can bet your ass I was and being the first customer the tickets were numbered 0001 and 0002 and they didn't sound like winning numbers to me so I forgot all about it. Meanwhile I had quite a few plants in my garden that were getting pretty large. So one Sunday morning I'm watching TV and see this police car go by and then he circled the block again, now I'm getting worried, finally on the third trip the car pulls into my yard and is almost at the back door so I couldn't see who it was until he knocked on my back door, which gave him a perfect view of my garden, so when I opened the door I thought this is it for you Ed, but not so, this was the same police officer I had met fishing and who I bought the tickets from, and grinning ear to ear, he seen the plants but never mentioned them, instead he said, "remember those tickets you bought from me, well one of them was the winner of $1000.00" Well holy F^#@ was all I could think of so I invited him in but he said he had to leave and I wanted him to go out the front door and no way was he going to bite but he said he would be grateful if I had my picture taken with him passing me the check and not being a complete fool I agreed. The next day he showed up at the office and the camera gal was already to take the picture and I said to him, You wouldn't believe the bag of shit I'm going to buy with this and he cracked right up and we had to take three pictures before he was under control, all in all it was a really big hit. I have found in the past if you treat them well you can get away with a little larceny, a $1000 worth, Ed

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Its a good thing I typed this a while ago 'cause today would have been impossible, Have a nice day all.
garfish
Oct 20, 2013 12:21 am
great story. and you are right about treating people right and usually they treat you right. anyway, as i learned a long time ago, cops always have the best weed.

hope ya kick  whatever has got you down so you can really kick back and relax.

take care

gary