Ostomy Reversal Issues - Considering Going Back to an Ostomy Bag

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470
Sam54
Jan 23, 2024 4:58 pm

I've had the ostomy bag and had the reversal done when I was 65. I'm now 70, but I'm constantly having BM issues just from sitting and standing. I've had 2 colonoscopies within the past year, the first one for a regular colonoscopy, and the second one to check for radiation burns for being anemic from pre-surgery. Has anyone gone from the reversal back to having an ostomy bag?

eefyjig
Jan 23, 2024 5:31 pm

Hi Sam, I have. I had a temporary ostomy in 2010 for ten months and then a reversal with a j-pouch. Three surgeries in ten months. I dealt with the j-pouch for five long years until I opted to have a permanent ostomy with Barbie butt in 2015. Best decision I ever made. My quality of life improved dramatically and I think I did more in the first year than I had done during the previous five. Only you can answer the question regarding how much you want to take, how much you're willing to accept as okay. I'd be happy to answer any questions you have and I'm sure you'll get more responses. šŸ˜Š

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Mysterious Mose
Jan 23, 2024 6:51 pm

Yes, there are people here that have gone back to a bag after being reversed for a number of years. Iggie comes to mind. You can search for his posts. He was just here a bit ago.

Daniel

Beachboy
Jan 23, 2024 7:42 pm

Thanks for your post, Sam. Sorry you're having complications with BM. I'm 65 with a colostomy. Reversal was offered by my surgeon, but I declined.

Hope you find relief.

Axl
Jan 24, 2024 6:56 am

Same here as Eefyjig, it was the best outcome for me.

 

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Justbreathe
Jan 24, 2024 3:03 pm

Hey Sam54

As you can see by the responses, there are different comments based on each individual's experiences, which become the ā€œbottom lineā€ - pun intended. We are all so different, but yet shared feelings are welcomed and helpful to all.

Part of my decision to not reverse was what you are experiencing. Once you have experienced major surgery (my ostomy was my first experience), it opened my eyes as to how I really felt about ā€œthe rest of my lifeā€ in terms of benefits and downsides of a reversal.

To me, BENEFITS MEANT a complete success, and I would be totally back to the way I was before this emergency surgery to remove a cyst.

To me, DOWNSIDES meant all the unknowns. These became more of an issue than the bag on my belly as my reversal date was constantly being pushed out to a future date, and life itself was returning to normal. I am still able to have a reversal but have chosen not to do so unless some complication causing severe pain rears its ugly head. Best wishes to you and whatever you choose. jb

Kimmy050263
Feb 04, 2024 12:29 am

I am looking at a reversal on March 15th of this year. I am very curious to know how things are going to work. One step at a time, my friend.