Vitamin C Deficiency and Scurvy: An Important Update for Ostomates

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354
Hisbiscus
Apr 10, 2024 12:12 am

Another update. So when I was there at the rheumatologist, she listened to me about all of my symptoms and she saw my hands. She said this makes me think of scurvy and asked me if I was eating enough fruit like oranges, etc. Well, with the ileostomy, I told her I can't eat oranges but that I used to drink orange juice and V8. It's been quite a while as I got busy with work, not thinking to pay more attention to my diet. So that day she ran a vitamin C bloodwork test. It came back today and is pretty damn low at 7. My range is deficiency. This kind of explains a lot of my symptoms as well.

Hair loss, dry hair, dry skin cracking open and bleeding spontaneously, toenails and feet bleeding, vomit, diarrhea, weight loss, bleeding gums, weakness, limbs locking up on me and not being able to move them, etc.

I looked up scurvy and sure enough, smart lady she is. If this vitamin C cures me, then this was a simple fix.

Thought I'd post this important update to let other ostomates remember how important it is to pay attention to our diets.

Jayne
Apr 10, 2024 12:25 am

Yes - 'we are what we eat' is a truism!

Enjoy the remedy ..... a bit of TLC

Good luck

 

BW

 

Jayne

 

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CrappyColon
Apr 10, 2024 1:12 am

I hope vitamin C is just what you need! I guess when PCPs aren't seeing scurvy much, it's not a go-to thought… but I wish one of the other doctors you'd seen would've thought like this one for your sake. I've been told rheumatologists are experts at putting the ‘puzzle' pieces together and seeing a big picture.

kittybou
Apr 10, 2024 1:21 am

Thank you!

warrior
Apr 10, 2024 1:23 am

This is why when you get regular blood work done, via your PCP, request vitamin labs too. You have a right to that.

Minerals are critical too. Zinc, B6, B12, etc. At least once a year. Magnesium. So important.

Sometimes it's the little things overlooked.

Advocate. You will be your best patient. 😊

They come in easy-to-chew gummies and are tasty.

Got my vote there.

 
Living with Your Ostomy | Hollister
IGGIE
Apr 10, 2024 9:40 am

Yes, Vitamin C, and if you have an ileostomy, you need B12. I take a B12 tablet every day, orange-flavored, and you just put it under your tongue. Regards, Iggie

Hisbiscus
Apr 10, 2024 4:55 pm
Reply to CrappyColon

Exactly! My sister said I'm a pirate. Have not seen too much scurvy since the old pirate days.

Hisbiscus
Apr 10, 2024 4:56 pm
Reply to IGGIE

Oh, you'd better believe, Iggy, that on my primary care appointment in 2 weeks, I'm having her check all my vitamins and minerals.

Jayne
Apr 10, 2024 8:55 pm
Reply to warrior

Warrior,

 

What are 'gummies'? - So far as I know we don't have these in the UK?

TY

 

BW

J

kittybou
Apr 10, 2024 8:59 pm
Reply to Jayne

Kinda like chewing on a piece of rubber-shaped bear, with lots of sugar. Really, really good! Not as good as cigarettes, but a lot safer!!!

CrappyColon
Apr 11, 2024 1:43 am
Reply to Jayne

One example 😀

https://www.olly.com/?gad_source=1&gclid=CjwKCAjw8diwBhAbEiwA7i_sJd4EVatYrFVpBurdExF9BTnTreibaiWhYRu_43FfMSfLEEB-YRrmExoCf4IQAvD_BwE

 

Hisbiscus
Apr 11, 2024 2:38 am
Reply to warrior

I just bought the pills. I have to take 500 mcg 2x a day plus juices, etc. Still feeling like crap. This kicked my butt worse than any illness I've been through.

yayas6gc
Apr 17, 2024 1:54 pm

Question. I have had my ileostomy for 14 years. Why can't oranges be eaten? I eat them all the time. Please advise. Thanks much.

warrior
Apr 17, 2024 4:02 pm

Uhh, I guess... you have to peel them first. 😳🤣🤦‍♂️

Sorry... couldn't resist.

You meant oranges as fruit in lieu of tablets. Tablets, I think, are less messy. Less acidic.

My 2 cents' worth.

Pinkpanther
May 04, 2024 10:01 pm
Reply to Hisbiscus

I take bariatric patients' vitamins. One a day. It's amazing how I can feel terrible before I go to bed, take one with a glass of water, and feel so much better in the morning. These vitamins make such a big difference.

Pinkpanther
May 04, 2024 10:02 pm
Reply to warrior

Peeling is a great idea! Love the humor! Nothing to get pithy about…

Hisbiscus
May 04, 2024 10:52 pm
Reply to yayas6gc

Because the nutritionist told me pulp-free juice is safer due to membrane seeds, etc., the peeling could get done, but I'm not doing that every day.