Here's the thing, I had an emergency ileostomy in October 2010 but had been too ill to work since September and as a result lost my new job. Because I was so ill and had lost so much weight its taking me a long time to recover. I still have UC in my remaining colon which I am waiting to have removed. This has got worse since my azathioprine was stopped to be ready for surgery. I have been on ESA and failed my ATOS medical (apparently I was too optimistic, honest and proud according to a benefits advisor after the medical!) so was advised I was no longer entitled to ESA and had to claim Jobseeker's allowance at the beginning of May. At my medical I provided evidence of an appointment for a J-Pouch reversal in June, this was ignored. I now have to go to tribunal to appeal the decision. I don't know how I can declare myself available to work when I am still ill and when I am facing 2 major surgeries again. Yesterday my operation was cancelled for the 3rd time and rescheduled for end of August now. It is not my fault this keeps happening - believe me I would rather it didn't. I really don't know where this leaves me regarding my appeal and I don't know what to do to get it through to these people that if I was well enough to work and available to work I would but I really can't. I'm so upset and stressed out by this and I feel like I'm banging my head against a brick wall. Has any else had to deal with this? ANy helpful suggestions?
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Hollister
Many factors can affect the frequency of your pouching system changes, including your stoma type.
Learn what impacts wear time and how you can extend it.
Learn what impacts wear time and how you can extend it.