Has anyone had a Crohn's or Colitis flare-up years later with an ostomy? What were your symptoms, and what meds were prescribed?
rosebud621
Jul 27, 2024 2:38 pm
Jayne
Jul 27, 2024 2:50 pm
Hello Rose Bud
Fortunately not - but others have had flare-ups - and I wish you the very best with managing such a situation. I regret I am not au fait with modern meds to manage a recurrence - I hope you are able to focus on remission ASAP.
Hug
Good luck
BW
Jayne
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Mysterious Mose
Jul 27, 2024 3:50 pm
I haven't had a recurrence of colitis with my ileostomy (no colon). However, I did develop proctitis. I am using mesalamine to combat it, and it looks to be cleared up. I also have stopped using any sort of anti-inflammatory. I thought I could go back to using ibuprofen after losing my colon. Silly me.
Daniel
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rosebud621
Jul 28, 2024 12:02 am
Reply to Mysterious Mose
Thank you for your reply. Yes, I only take Tylenol.
Mysterious Mose
Jul 28, 2024 5:20 pm
Reply to rosebud621
I spoke a bit soon about the proctitis being cleared up. I have been trying to wean myself off the mesalamine by going to every other night, as suggested by my gastro PA. I still am getting some reddish coloration, so I am going back to daily. The problem is that the stuff is so damned expensive with my "insurance".
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Morning glory
Jul 29, 2024 7:13 pm
No, I haven't. I sure hope you feel better. Have you been diagnosed as having a flare-up of either?
Ismini
Aug 04, 2024 3:06 pm
Reply to Mysterious Mose
I have the same situation, although I have to take a mesalazine suppository in the morning and prednisolone in the evening. Whenever I try to reduce either, I get the reddish coloring too. Very frustrating indeed.