Have had my ileo for 40+ years, and since I had a revision done laparoscopically 6 years ago to lengthen my stoma, my tailbone lower back pain is a constant with some nausea/cramping thrown in. Any ideas?
Louise77
Sep 22, 2024 8:53 pm
CrappyColon
Sep 22, 2024 9:05 pm
Just clarifying, you’ve been in pain w/ constant nausea and cramping for 6 years since your revision?
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Morning glory
Sep 22, 2024 9:40 pm
What does your Dr. say about this? That's a long time to suffer without knowing what the cause is.
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Kathy
Sep 23, 2024 3:25 pm
Reply to CrappyColon
My doctor says it's probably IBS. Great. A name pulled out of a hat but no solution!
Louise
CrappyColon
Sep 23, 2024 4:48 pm
Reply to Kathy
Hey Louise, have they done any scans or anything since it started after that surgery?
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Kathy
Sep 24, 2024 5:13 pm
Reply to Morning glory
I had a tailbone X-ray, but that was 4 years ago and showed nothing. Because I am on drugs for depression and anxiety, they think it is all in my head.
infinitycastle52777
Sep 24, 2024 7:11 pm
Reply to Kathy
I don't think it is all in your head, pain is real, and if you have pain then they should be searching for a reason and trying to make you more comfortable. They can give you something for nausea. And even something for pain. I have been on both kinds of medication. Persist with your doctor or get a referral to a specialist. Gastrologist if they think it might be IBS. Someone who can help you. If they can't.
Morning glory
Sep 24, 2024 7:36 pm
Reply to Kathy
This makes me so angry. The x-ray doesn't measure pain. I remember the idiot Dr. telling me my pain from UC was caused by worrying. My brother had CD and was in treatment from the same Dr. Thank God I went to Duke University Health Care where I was taken seriously and treatment was compassionate. I wasted too many years suffering with the local Dr. Try to find other doctors that will do more than an x-ray.