Does anyone have a loop ileostomy? I have fistulas along with perianal Crohn’s Disease and had to have a loop ileostomy created so it can heal.
Is there anyone else going through this?
AJR77
Nov 15, 2024 1:13 am
Shamrock
Nov 15, 2024 1:29 am
Not me, I have a double barrel ileostomy. It has two stomas, one for mucus which isn't a bother and the other for stool.
It's supposed to be temporary, but they say I have terminal cancer and should have been dead months ago.
I look upon every day as a free gift from God.
Hang in there, it will get better, just takes time. 😊
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 37,000 members who truly understand you.
It's not all about ostomy. We talk about everything.
Many come here for advice or to give advice, others have found good friends, and some have even found love. Most importantly, people here are honest and genuinely care.
🛑 Privacy is very important - we have many features that are only visible to members, ensuring a safe and secure environment for you to share and connect.
Create an account and you will be amazed by the warmth of this community.
AJR77
Nov 15, 2024 1:40 am
Mine is supposed to be temporary too. My surgeon doesn’t know right now if it will be reversed.
Advertisement
Hollister
Resuming your personal and work life after ostomy surgery can be challenging to adjust to a new life.
Learn ways to adjust to life after ostomy surgery.
Learn ways to adjust to life after ostomy surgery.
SusanT
Nov 15, 2024 6:13 pm
Hi AJR77,
I don't have an ileostomy but I am currently struggling to heal a small bowel fistula and we have recently learned I also have a urine fistula too. Since surgery lead to my fistulas they are reluctant to operate again. So in addition to 2 new stomas, I came home with an accordion drain to keep the drainage out of my pelvis.
What kind of fistulas do you have? I think there are several types.
Words of Encouragement from Ostomy Advocates I Hollister
