Scleroderma

Replies
1
Views
4644
Catherine
Nov 28, 2011 11:41 pm
Hello..I was wondering if anyone has scleroderma. I was diagonised with scleroderma along with an overlap of RA, lupus, sjogrens. Because of this underlying condition, this was the main reson that I had to have my ileostomy. Just curious if others have had this experience as I have. Thanks! Catherine
Past Member
Nov 29, 2011 5:59 am
I, like you, have had a variety of diagnosis.  RA, Lupus, MS and many more.  I am currently working under Dercums Disease (probably correct).  I will read about sjogrens and scleroderma - two of many considerations for me - but I don't remember enough to understand about the relationship with ileostomy.  I remember that it is all related to autoimmune system disorders - the body attacking itself.  I have several of those including thyroid removal, and no more pigment.  So nothing works correctly and I suppect it is all interwoven.  I don't have anything more to offer just now but I will be watching to see how you are doing and if there are other related conditions as people respond.  Interesting inquiry.



I have been on this site for a bit more than a year.  After surgery I had no answers about anything. I found many answers - practical and support - from people here on this site. Lots of really good people.





Welcome, Carol
Gray Logo for MeetAnOstoMate

Why Join MeetAnOstoMate?

First off, this is a pretty cool site with 37,000 members who truly understand you.

It's not all about ostomy. We talk about everything.

Many come here for advice or to give advice, others have found good friends, and some have even found love. Most importantly, people here are honest and genuinely care.

🛑 Privacy is very important - we have many features that are only visible to members, ensuring a safe and secure environment for you to share and connect.

Create an account and you will be amazed by the warmth of this community.