I'M ALIVE!

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MissMeganM
Oct 03, 2013 12:37 pm
And I have no extra holes, lol.  Primeboy was right in saying sometimes we just have to let go and trust.  



I had a couple of scopes done yesterday and all went well.  I was put to sleep and don't remember any of it, but better than that is I didn't sustain the bowel perforation I was so worried about sustaining.  As a matter of fact, I have only a very small patch of active disease in the part of the small intestine I am using that is very mild - so much so that it does not warrant any treatment.  The part of my intestine that is OFFLINE is another story, but I knew that already.  My doctor told me that should I decide I wanted to undergo a reversal of my ileostomy, I would lose a great deal of my small intestine.  I knew this.  It's one of the reasons I have elected to keep my ostomy in the first place.  She told me that I was a most unusual case - there are no cases in the books like mine.  I was unique.  I laughed and asked her if that gleam in her eye meant that she was going to use me as her case study, LOL



So good news!  What's more I have learned from this experience that there ARE medical professionals I can trust, who WANT me to get better and will do everything they can to help me do that.  What a world we live in, what a crazy and horrible and beautiful world.  I'm glad I'm still here to enjoy it, bag and all

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christiesdad
Oct 03, 2013 12:39 pm
Great feeling isn't it.

Congrats!!



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Past Member
Oct 04, 2013 11:27 pm
  MissMeganM, your positive attitude and jest for life is inspirational to me. Your post lifted my spirits to a level unseen in 23 days and made me realize that a bag is not the end, but the beginning of a new day. It's now very clear to me that I have no right to feel sorry for myself anymore.....time to simply "get on with it"

xmlo/o

P.S....... Great pics. Maine looks like a wonderful place to hang!

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o/o

Kolan
MissMeganM
Oct 07, 2013 12:42 pm
Good Kolan

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  I'm glad.  I remember being where you are now - when I was in the hospital, I laid there and cried all night one night in my bed because I didn't think anyone was going to hug me ever again.  I didn't think I'd go camping, or swimming, or be attractive to anyone anymore.  But I was SO WRONG.  It takes courage to set yourself free - but you would never have made it this far if you WEREN'T brave and strong.  So remember that.......and jump

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bjdaniels
Oct 09, 2013 3:26 pm
Congratulations MissMeganM, and YES we are alive, bag and all. It's a life change yes, but things could be worse, people suffer with alot worse.  Let's just keep on at life, it's still very good! Amen
 

Words of Encouragement from Ostomy Advocates I Hollister

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Ewesful
Oct 09, 2013 3:51 pm
Proud of you for dealing with it head and thankful for the outcome-- be sure they write this up - you never know when you will be a godsend to someone else -- are you dealing with FAP or something else?
MissMeganM
Oct 09, 2013 6:30 pm
It's a weird story, Ewesful.  Actually what happened to me was I have Crohn's disease but had an incorrect diagnosis of IBS.  I had my tubes tied and during the procedure the OB perforated my bowel while she was taking down the numerous, severe adhesions I had.  She definitely acted out of the scope of her practice - didn't realize she had done it, sewed me up and sent me home.  Two days later, I was rushed to the ER with septic shock, a complete small bowel obstruction and perforation.  I was taken to emergency surgery, where I was finally diagnosed with Crohn's disease and given an ileostomy to save my life.  I almost didn't make it.  This was last October - almost to the DAY of my scopes.



I underwent those scopes to see how the disease had progressed over the past year and to get a baseline "normal" for me, since I have had the disease for 12 years or so and NEVER have had treatment for it or any scopes before.  I'm SO GLAD it went well, I was terrified to have to relive the events of last October.
Ewesful
Oct 09, 2013 10:45 pm
I am amazed and so thankful for you = I had a Dr remove a horrendous mess of fibroids as well but it was all done without cutting through the abdomen. I was very lucky that all went well - the expectation of cancer was 99% but none was found and I am so thankful....especially in view of the FAP gene that was discovered so many years later --



The iieostomy sure has it's moments but my gosh it is a dream compared to the horrors of what could have been!



I have the scans at one year and I am asleep as well when they are done.  The technology is wonderful....I so hope you have a wonderful year ahead -- Hugs of happiness!
MissMeganM
Oct 10, 2013 12:43 pm
Thank you thank you thank you......and all the best wishes for your coming year too

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Past Member
Oct 10, 2013 8:36 pm


Like almost dying?

Glad you were able to find a good driver for your scope
MissMeganM
Oct 14, 2013 12:35 pm
Thank you so much for being you, lol.  It helps me

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Past Member
Oct 14, 2013 4:54 pm
you are more than welcome