I am still in the process of being evaluated for a total colectomy and ileostomy (permanent). I am on day 2 of the Sitz marker test, day "0" being Wednesday, the day I took the pill, so it's Friday evening. I will get an X-ray on Monday and also Wednesday if there are any residual markers. If it indicates colonic inertia, we will be scheduling surgery. I had a small bowel movement Thursday morning, which surprised me after all my many meds were removed, but I thought maybe it's residual from the day's prior medication. I don't imagine I lost any markers within 24 hours, but I'm wondering what others have experienced. I really just want to get on with the surgery, but of course, I want the right decision.
Now that we may finally be ready to schedule, I'm wondering how long common recovery is and does it mean mostly being in bed for weeks or just puttering after a month? I'm sure it's different for all, but I have insulin-dependent type 2 diabetes, Sjogren's, and multi-system autoimmune disease including liver (early stage 2 AIH with PBC overlap), Crohn's, POTS, and small fiber polyneuropathy (non-length). I'm already on morphine for nerve pain and arthritis. So, I generally don't heal well and am relatively disabled, but can "putter" for simple food prep and tasks if I'm not on my feet too long. Just wanting to get a picture and help my dear hubby better understand what to expect in helping me in recovery. Thanks for any input or advice.

Past Member
Sep 10, 2022 12:57 am
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