I am writing this to inform all people who read my blog that I have very big plans coming up in the next 6 months to a year. Sometime in the summer, I will be undertaking another operation that will affix an internal pouch and a different type of stoma, a temporary one that's at a higher position (not in terms of placement of the bag) in the small intestine. Six to eight months after this has been constructed, providing there have been no problems with the internal pouches failing or going wrong, another, much simpler operation will be done to re-attach the newly formed stoma or ileostomy to the much newer part of my body, the internal pouch.
The only things I am worried about are Pouchitis (inflammation in the lower part of the internal pouch) and the fact that this new operation is far bigger than my original operation. Therefore, I will be in much worse condition afterwards than I was last time during and after my first operation. I hope I will still have all the support afterwards from this website and its members and from my stoma nurses (I call them mine because they are of high priority to me)
Wow... I know the thought of multiple surgeries and months of recovery must leave you with such a "mixed bag" (no pun intended) of feelings.
Why the internal pouch? Is this a choice or necessity? Either way, I wish you great success and a very speedy recovery. May knowing what you're facing (factually), having gone through prior recoveries (painfully), you're already ahead of the game. You're smart and brave, I know you'll do fine...
Please keep us informed of your status and progress along the way, okay? Your experience can and will help others making that very difficult and scary decision.
Looking forward to GREAT news... BEG
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Learn about some basic diet and ostomy pouch routines that can help prevent them.