I was wondering if there is anyone else out there that has gone through this... A few months ago, I started leaking and air passing through my stoma. After seeing the doctor in December, he was shocked to find this hole - so shocked that he was unsure of how it got there, let alone how to fix it. I have been told my surgery will be anytime but could take until February. I'm a little freaked out but know my doctor will figure it out.
lilcherub
Jan 15, 2014 3:47 pm
ron in mich
Jan 15, 2014 5:01 pm
Hi Lil, it sounds like what is called a fistula, which is caused by an infection due to an illness like Crohn's disease. I would do some research before having surgery. Good luck.
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sony34
Jan 15, 2014 9:23 pm
I am just now learning about this BCIR procedure. Can we chat more about it? I want to see if I should discuss with my doctor... Thanks.
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lilcherub
Jan 15, 2014 11:15 pm
Sure, you can feel free to ask away. I have had mine since 2002 and had a rough time, but the few rough times will never make me regret my choice. I love it and it's so life-changing. As in 97, I had the external ostomy.
TimothyP
Jan 23, 2018 5:00 am
I have had my ostomy since the age of 15. I seem to manage okay day to day.
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