Ostomy Topics

Hi, I am looking for people close to me who know what I am going through and dealing with an ileostomy. I am in Ashland, Kentucky; my area is considered the tri-state area of Kentucky, Ohio, and West Virginia. If you want, look me up on Facebook or Instagram, Luauna Daniels

I desperately need a good support belt that can be customized for a double ostomy.

My urostomy is badly recessed and requires extra support. (Due to other health issues I won't be a candidate for revision surgery for some time)

I have a hernia under my colostomy that has lead to multiple leaks caused by bulging. The hernia doesn't require surgery yet and I'd like to keep it that way.

My ...

Hello again, everyone!
I had so much great feedback from my first question, I thought I would ask one more.
Eight weeks into being new to colostomy, things have been going very well, to be honest, actually a lot better than I anticipated for an elective surgery. Yes, I did choose this! I had an injury to my spinal cord at the C4 level in 2008. If anyone knows anything about spinal cord injurie ...

Let's talk about hernia belts, preferably ones to prevent a hernia.
I am 7 weeks post-op with an ileostomy.
So I am getting very anxious about getting outside and getting some work done, but I will let myself heal up some more.
One of my concerns is developing a hernia.
I talked to my stoma nurse and she said, "Don't get a hernia belt with a hole for your ostomy, because they don't help around ...

Hey gang, long-time ostomy guy here. Thirteen-plus years with an ileostomy. Generally, no complaints. Crohn's disease, life-saving surgery, great surgeon, good insurance. My question is about how often folks have a seal failure. I've had them on and off over the years, and I've dialed in my products to get a very satisfactory result overall. I try not to let my appliance go too long—about a ...

Lol... not in that sense! Hehe. I've recently got into more cardio rather than just weight training but, my pouch seems to come undone... even on days I haven't sweat too much. Anyone have any tips/tricks/advice?

After a couple decades of unexplained stomach and bowel issues I had a loop ileostomy done last Nov. Made me feel so much better that did a "robotic" total ostomy this past May. Had a large amount of unexpected adhesions in my abdomen area. At that the time my surgeon said it would be good to have a "Barbie Butt" procedure in the future. I am feeling great and ready to move on with life bu ...

For years I used just a one piece pouch. I fought tooth and nail against using 2pc, I thought it would be uncomfortable. I tried it after last surgery and love 2pc. I'm looking to donate transparent 1pc pouches and a few accessories to someone in my area, Davenport, IA

Hi, I have a question. I had surgery 6 weeks ago and there was a complication, and I needed to have an ileostomy. I will be getting a reversal once I am healed. My question is: my abdomen gets tender; is this normal? I don't have a blockage; the tenderness comes and goes. Has anyone experienced this?

It’s been quite a while since I’ve come on the platform, I hope all are well.
To sum up my situation in a nutshell, I was diagnosed with stage 1 colon cancer in December 2023, subsequently leading to a diagnosis of Lynch Syndrome.

In February, I underwent a total colectomy with ileorectal anastomosis, full hysterectomy (ovaries gone, too.).

After the surgery I was struggling with acci ...

Hi All,

It’s been six weeks since I had a colostomy w a permanent bag. I had to go back into the hospital a week later with 104 fever, elevated heart rate, and blood clots around my liver. They never did figure out specifically what was wrong, I responded well to antibiotics so they assumed a bacterial infection which cleared up. I have since then recovered from all that. I was told b ...

Hello. I had surgery on September 6th for an ostomy. I still don't feel better. I have a hernia that developed a week after my surgery. It showed up on a CT scan. (No blockage) Anytime I drink or eat, I have pain in my chest, tightening in my stomach, and a tightness that feels like I'm suffocating. My CT scans have shown no blockage but a lot of gas. Anytime I eat, I choke on my food and liqu ...

Howdy! I'm new here and tried a search for this topic but didn't find what I was looking for, so apologies if this has been covered. I don't have a surgery date yet, but should have one scheduled within a couple of weeks. I work remotely, and I'm curious about other folks who've had a colectomy and only have to “commute” to their home office to work from a computer each day. Did you all ha ...