Seeking Surgeon for Urostomy Conversion and Reconstruction

I was born with an extrophy of the bladder in '64 and have had my urostomy since '71.  I'm looking for a specialist who could convert my urostomy into a continent diversion like Sweede's.  I'd ultimately like to get rid of old scar tissue and also get vaginal reconstruction due to my condition.  Where could surgeoens all do this?  Could it be covered on insurance in the USA?  Could I be a candidate if I have 3rd stage kidney disease and a history of kidney stones due to recurring UTI infections?

I believe in miracles!  Thanks for any info you can provide!!!

I,m sorry I don't know have you tried Duke?  I took the liberty of reading our profile, and have to say what jerks!

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  No one derserves that I truly believe that true love is unconditional, I pray that you find a pardner who will accept and love you just as you are I am a nurse and I know that everyones appearence can be changed amost completly in a matter of minutes, fire, MVI's, gunshots etc.  None of us know what physical changes we may have to endure until our time is ended.

Eddie

I was born with an extrophy of the bladder in '64 and have had my urostomy since '71.  I'm looking for a specialist who could convert my urostomy into a continent diversion such as the Miami, Indiana or Kock pouches.  I'd ultimately like to get rid of old scar tissue and also get vaginal reconstruction due to my condition.  Where could I find skilled, compitent surgeons to do all this without giving me excuses like:  "You have too many adhesions inside!  You're fine!  It's too much of a risk!"?  I know it can be covered by insurance, because with the ileal conduit, I'm getting too much reflux which is damaging my kidneys & I need help FAST!  I need to find a surgeon & nephrologists who won't be aftraid to operate on a healthy, 125lb, 5'3" female candidate who's had 3rd stage kidney disease and a history of kidney stones due to recurring UTI infections?

I believe in miracles!  Thanks for any info you can provide, Dr. Phil!!!