Ostomy Topics

Has anyone had a recurrence of Crohn's after an ileostomy? What are your symptoms?

So, I got an email about this pouch. Gave them a call to try it out. They have them with a grey cloth as well. I always like clear.
Thought I'd post in case anyone else is interested in calling in and requesting a sample.

Hi, my name is Gord and I am over two years into the ostomy and have recently started irrigation. Has anyone got any pointers for me? I have started with the help of a stoma nurse to do it every night around 8 PM, but I am thinking I should do it a bit later. Or do people find the morning is better? I have had few problems while I have had my ostomy. Any suggestions would be greatly appreciate ...

COPING WITH CRAP.

Those with stomas cope with crap,
as sometimes it’s a handicap
to have crap uncontrollable,
filthy, smelly, and horrible.

It can be quite embarrassing,
humiliating, harassing,
for crap to show in company
and yet, there is an irony.

Those with chronic crap trouble
can make their problems more than double
if they let it get to them,
causing them mental mayhem.

But tho ...

I thought I would post/share this while it is still fresh on my mind. As all of you know, my reversal was unexpected because of the hernia that developed and caused a blockage to my intestines. I was unable to have a pre-op appointment with the surgeon since I landed in the ER three days after my consult. My surgeon was out of town, so I had a handful of docs and specialists that were keeping ...

Hi everyone! So in 3 days it will be 3 months since my colostomy reversal surgery. I still get these shooting pains in my rectum, but they are not as strong as they used to be or as frequent, and it's mostly when I sit in an awkward position or if I've been sitting for a while. For now, I don't cross my legs, but I can sit Indian style without pain or discomfort. There's no pain when passing g ...

Thrilled and terrified... I had a colostomy due to perforation on 4/10/24, and after my third post-surgical check-up today, I am now scheduled for a reversal on 7/16/24. I was really just getting used to having an ostomy. I am a bit terrified about the reversal - while I don't like "having a bag," I do like not having all the IBS issues, etc., and am terrified to have bathroom issues again. Fi ...

Watermelon, a large splash of lemon juice, and sugar - blend - “Bottoms up” or, for all ostomates, “belly-up.” jb

I don't know if I will end up with a bag again, need to do my hip first this year. I had a colostomy 2 times before but had reversals, this time doc said it would be permanent. I just don't know, my hubby was my supporter but he passed 3 yrs ago. Not looking either, I just don't know how to deal with it this time.

I love to stay home and go outside in my patio watch my puppy get full ...

Hello, I'm new. I will make the story short. I have an immune disorder: psoriasis, arthritis, collagenous colitis. I'm 60 and move around pretty well, but 15 years of gut pain, accidents, and running to the bathroom 12 times a day led me to make the decision to have my colon removed 5 months ago in NY by surgeon Fenza Remzi. All in all, I would say life is better now than it was. No more gut c ...

Hi guys, I am new to this site and just looking for some input on things. Right now, my current issue is constantly smelling my bag even after I have just cleaned it out. I don't have a filtered bag, so I know it's most likely bag lifting in spots. My biggest issue right now is that I have developed a very large hernia that just keeps growing, and I know that is causing my bag and wings to not ...

As a fairly recent stoma owner, I have experienced a few nighttime disasters and am looking for advice on how to manage when staying at a hotel, etc.
It's great to be part of this site as I have learned so much about living with my stoma.
Thanks, all.

Hi all, just had my stoma moved; it was very low. With the stoma higher, I want to wear pants with a belt but will need a cover like the Stomaplex, StomaGear, or others. I looked at the Stealthbelt, but that doesn't seem to support against the pants/belt pushing against the stoma. Does anyone have experience with these items or have some wisdom to share? Thanks!

My stoma has changed size and I'm going to try a moldable convex wafer to fit my stoma size well.
I've been using a precut wafer with Duradhesive convexity and I use Stomahesive paste on the wafer to allow for a longer-lasting seal.
I've watched the videos for the application of the moldable wafer and it looks like you're not supposed to take off the release paper until you're ready to put you ...

I'm having a very unusual problem at the moment. My stoma for the last 9 months after having an operation for a parastomal hernia has been okay, but as of last Sunday 16th, my stoma started to prolapse from 25mm to 50mm, but then at night and in the morning, it had retracted to almost flat. It has been doing this each day and night since. Has anyone had this problem before? Regards, IGGIE